Crohns & Ulcerative Colitus - Inflammatory Bowel Disease (IBD)
| Authority | Department of Health and Social Care |
|---|---|
| Date received | 2018-07-23 |
| Outcome | Some information sent but part exempt |
| Outcome date | 2018-08-15 |
| Case ID | 545033 |
Summary
A request was made for island-wide statistics on Crohn's and Ulcerative Colitis to support an awareness campaign, but the Department of Health and Social Care could only provide data from Noble's Hospital due to privacy exemptions regarding children.
Key Facts
- The Department does not hold island-wide information as it excludes GP practices.
- Provided data is limited to Noble's Hospital records up to 5th August 2018.
- Information on patients under 18 was withheld to prevent individual identification.
- The request was partially exempt under Section 25 of the Freedom of Information Act 2015.
- The requester intended to launch a campaign with the slogan 'Not every Disability is Visible'.
Data Disclosed
- 934
- 274
- 30
- 1026
- 460
- 2018-07-23
- 2018-08-15
- 2018-08-05
- 545033
Exemptions Cited
- Section 25 (b) (i) and (ii) - Absolutely exempt personal information
- Data Protection (Application of GDPR) Order 2018 - Article 5 and Article 6
Original Request
I need to know how many on the island, children, adults suffer from Crohns and Colitus (UC) condition. I would like to start an awareness campaign to help sufferers from this condition. 'Not every Disability is Visible'
Data Tables (1)
| Condition | Count |
|---|---|
| Episodes of care with Crohns as a diagnosis code (adults) | 934 |
| Patients (adults) with a diagnosis of Crohns disease | 274 |
| Episodes of care with Crohns as a diagnosis code (under 18) | 30 |
| Episodes of care with Colitis as a diagnosis code (adults) | 1026 |
| Patients (adults) with a diagnosis of Colitis | 460 |
Full Response Text
Chief Executive: Malcolm Couch Freedom of Information Team DHSC Digital Cronk Coar Strang IM4 4RJ
(01624) 642621 dhsc@foi.gov.im Website: www.gov.im/dhsc 14 August 2018
Our ref: 545033
Dear ###
We write further to your request which was received on 23 July 2018, which states:
"I need to know how many on the island, children, adults suffer from Crohns and Colitis (UC) condition. I would like to start an awareness campaign to help sufferers from this condition. 'Not every Disability is Visible'"
Our response to your request is as follows: The Department does not hold Island wide information, as this would include GP Practices. The information pertains only to Nobles Hospital Information. This table details the answer to your response, up to 5th August 2018: Condition Count Episodes of care with Crohns as a diagnosis code (adults) 934 Patients (adults) with a diagnosis of Crohns disease 274 Episodes of care with Crohns as a diagnosis code (under 18) 30 Episodes of care with Colitis as a diagnosis code (adults) 1026 Patients (adults) with a diagnosis of Colitis 460
Section 25 (b) (i) and (ii) While our aim is to provide information whenever possible, in this instance we are unable to provide some of the information you have requested because it is absolutely exempt under section 25 of the Act (absolutely exempt personal information). The reasons why that exemption applies are that: • The Department of Health and Social Care is satisfied that the information amounts to personal data of which you are not the data subject; and • The Department of Health and Social Care is satisfied that disclosure of the information would contravene one of the data protection principles as set out at Article 5 of the General Data Protection Regulation as it applies in the Isle of Man pursuant to the Data Protection (Application of GDPR) Order 2018, namely that the Department of Health and Social Care can only disclose the information where it would be fair, lawful and meet one of the conditions for lawful processing in Article 6, and in this case, none of those conditions have been met. The figures for patients who are under 18 are extremely low, which could lead to individuals being easily identified.
Please quote the reference number 545033 in any future communications.
Your right to request a review
If you are unhappy with this response to your freedom of information request, you may ask us to carry out an internal review of the response, by completing a complaint form and submitting it electronically or by delivery/post.
An electronic version of our complaint form can be found by going to our website at https://services.gov.im/freedom-of-information/Review . If you would like a paper version of our complaint form to be sent to you by post, please contact me and I will be happy to arrange for this. Your review request should explain why you are dissatisfied with this response, and should be made as soon as practicable. We will respond as soon as the review has been concluded.
If you are not satisfied with the result of the review, you then have the right to appeal
to the Information Commissioner for a decision on;
1. Whether we have responded to your request for information in accordance with
Part 2 of the Freedom of Information Act 2015; or
2. Whether we are justified in refusing to give you the information requested.
In response to an application for review, the Information Commissioner may, at any
time, attempt to resolve a matter by negotiation, conciliation, mediation or another
form of alternative dispute resolution and will have regard to any outcome of this in
making any subsequent decision.
More detailed information on your right to a review can be found on the Information
Commissioner’s website at www.inforights.im.
Should you have any queries concerning this letter, please do not hesitate to contact me. Further information about freedom of information requests can be found at www.gov.im/foi.
I will now close your request as of this date.
Yours sincerely