IBD population

Summary

A request was made to Manx Care for the number of patients with specific Inflammatory Bowel Disease (IBD) codes at each GP surgery to aid service development. The authority responded that the information is not held and cannot be found after reasonable steps.

Key Facts

• The request sought patient counts for various IBD conditions including Crohn's disease and Ulcerative Colitis across Isle of Man GP surgeries.
• Manx Care determined they do not hold the requested data or could not find it after taking reasonable steps.
• The requester was advised to contact individual GP practices as they may hold the information.
• The response cites section 11(3)a of the Freedom of Information Act 2015 as the reason for refusal.
• The request was received on 9 April 2024 and the outcome was issued on 23 May 2024.

Data Disclosed

• 2024-04-09
• 2024-05-23
• 3787689
• section 11(3)a

Exemptions Cited

• Section 11(3)a of the Freedom of Information Act 2015 (Information not held)

Original Request

Please can you provide me with the number of patients at each Isle of Man GP surgery who currently have a coded EMIS "problem" which words include "Ulcerative Colitis", "Microscopic colitis", "Lymphocytic colitis", "Crohn's disease," "Crohn's colitis", "Inflammatory Bowel disease", "idiopathic inflammatory bowel disease", "Crohn's disease of the ileum", "Crohn's disease of the ileum unspecified", "Crohn's disease of the large bowel NOS", "Crohn's disease of the small bowel NOS", "orofacial Crohn's disease", "Ulcerative proctitis", "Ulcerative proctocolitis", "Ulcerative Colitis and/or proctitis", "Ulcerative proctocolitis", "[RFC] Ulcerative Colitis", "[X] Other Ulcerative Colitis", "Ulcerative (chronic) ileocolitis", "Ulcerative (chronic) enterocolitis", "Ulcerative pancolitis", "Ulcerative pancolitis NOS", "collagenous colitis", "Ulcerative ileocolitis", "Ulcerative rectosigmoiditis", "Ulcerative proctocolitis NOS", "Ulcerative enterocolitis", "Ulcerative pancolitis", "other idiopathic proctocolitis", "Idiopathic proctocolitis NOS", "regional enteritis of the small bowel", "regional enteritis of the large bowel", "regional enteritis ileocolitis", "regional enteritis NOS", "regional enteritis- Crohn's disease", "Crohn's disease of the terminal ileum", "[RFC] Crohn's disease", "Crohn's disease of the ileum NOS", and "Crohn's disease of the ileum unspecified". I do not wish to have the data of infective colitis or gastritis. This is for the purpose of getting data to identify the numbers of patients identified with this condition to formulate the development of services.

Data Tables (1)

Full Response Text

Manx Care Noble’s Hospital, Strang Braddan, Isle of Man IM4 4R (01624) 650 000

Our ref: 3787689 23 May 2024

Dear ###

We write further to your request received 9 April 2024, which states:

"Please can you provide me with the number of patients at each Isle of Man GP
surgery who currently have a coded EMIS "problem" which words include "Ulcerative
Colitis", "Microscopic colitis", "Lymphocytic colitis", "Crohn's disease," "Crohn's colitis",
"Inflammatory Bowel disease", "idiopathic inflammatory bowel disease", "Crohn's
disease of the ileum", "Crohn's disease of the ileum unspecified", "Crohn's disease of
the large bowel NOS", "Crohn's disease of the small bowel NOS", "orofacial Crohn's
disease", "Ulcerative proctitis", "Ulcerative proctocolitis", "Ulcerative Colitis and/or
proctitis", "Ulcerative proctocolitis", "[RFC] Ulcerative Colitis", "[X] Other Ulcerative
Colitis", "Ulcerative (chronic) ileocolitis", "Ulcerative (chronic) enterocolitis", "Ulcerative
pancolitis", "Ulcerative pancolitis NOS", "collagenous colitis", "Ulcerative ileocolitis",
"Ulcerative rectosigmoiditis", "Ulcerative proctocolitis NOS", "Ulcerative enterocolitis",
"Ulcerative pancolitis", "other idiopathic proctocolitis", "Idiopathic proctocolitis NOS",
"regional enteritis of the small bowel", "regional enteritis of the large bowel", "regional
enteritis ileocolitis", "regional enteritis NOS", "regional enteritis- Crohn's disease",
"Crohn's disease of the terminal ileum", "[RFC] Crohn's disease", "Crohn's disease of
the ileum NOS", and "Crohn's disease of the ileum unspecified". I do not wish to have
the data of infective colitis or gastritis.
This is for the purpose of getting data to identify the numbers of patients identified
with this condition to formulate the development of services."

While our aim is to provide information whenever possible, in this instance the public authority does not hold or cannot, after taking reasonable steps to do so, find the information that you have requested. This is in line with section 11(3)a of the Act, as a practical refusal reason applies; namely we do not hold or cannot, after taking reasonable steps to do so, find the information that you have requested.

However, you may wish to contact GP Practices individually as they may hold the information you seek.

Please quote the reference number 3787689 in any future communications.

Your right to request a review

If you are unhappy with this response to your freedom of information request, you may ask us to carry out an internal review of the response, by completing a complaint form and submitting it electronically or by delivery/post.

An electronic version of our complaint form can be found by going to our website at https://services.gov.im/freedom-of-information/Review . If you would like a paper version of our complaint form to be sent to you by post, please contact me and I will be happy to arrange for this. Your review request should explain why you are dissatisfied with this response, and should be made as soon as practicable. We will respond as soon as the review has been concluded.

If you are not satisfied with the result of the review, you then have the right to appeal to the Information Commissioner for a decision on; 1. Whether we have responded to your request for information in accordance with Part 2 of the Freedom of Information Act 2015; or 2. Whether we are justified in refusing to give you the information requested.
In response to an application for review, the Information Commissioner may, at any time, attempt to resolve a matter by negotiation, conciliation, mediation or another form of alternative dispute resolution and will have regard to any outcome of this in making any subsequent decision. More detailed information on your right to a review can be found on the Information Commissioner’s website at www.inforights.im. Should you have any queries concerning this letter, please do not hesitate to contact me. Further information about freedom of information requests can be found at www.gov.im/foi.

I will now close your request as of this date.