Clinical Advisory Group minutes

AuthorityManx Care
Date received2024-04-01
OutcomeAll information sent
Outcome date2025-01-15
Case ID3780121

Summary

The requester asked for Clinical Advisory Group (CAG) minutes, membership details, and specific information regarding discussions on COVID vaccine injuries. The authority, Manx Care, disclosed all requested information, providing 96 documents totaling 402 pages, including agendas and a detailed NHS plan on Long COVID.

Key Facts

  • Manx Care released all requested information regarding the Clinical Advisory Group.
  • The disclosure included 96 documents spanning 402 pages.
  • Meeting agendas from 2021 and 2022 cover topics such as Long COVID, vaccine allergies, and dementia prevalence.
  • A specific document titled 'Long COVID: the NHS plan for 2021/22' was included in the response.
  • The group discusses clinical pathways and capacity bills, reporting to various departments.

Data Disclosed

  • 402 pages
  • 96 documents
  • 2024-04-01
  • 2025-01-15
  • 12 August 2021
  • 23 June 2021
  • 30th March 2022
  • 89 clinics
  • 1500 referrals
  • 1.5 million visits
  • 50 million
  • 2019
  • 2050

Original Request

Hello, 1. Please can you provide all meeting minutes including relevant documents discussed or circulated to be discussed for CAG meetings to current date. 2. Please state the purpose of this group and when it was created 3. Please provide the members of this group, or departments represented 4. Who does this group report to and advise? If more than one, please state all. 5. Does this group discuss covid vaccine injuries. If so, please specify how many times this was discussed. Thanks

Data Tables (224)

Item No. Subject Discussion Lead Document(s)
Attached
07/21 Apologies SA
08/21 CATCH Sites Verbal presentation by Juan Corkill JC
09/21 Covid-19 Pathways SA
10/21 Any Other Business a) Results Acknowledgement SA
11/21 Next meeting: Wednesday 18 August 2021 at 4.30 pm on MS Teams.
Discussion
Lead
Item No. Subject Discussion Lead Document(s)
Attached
01/21 Apologies SA
02/21 Improving the Quality of Electronic Discharge Summaries SA
03/21 Covid 19 Vaccines/Allergies SK
04/21 Long Covid; the NHS Plan for 2021/22 SA/JS
05/21 Any Other Business All
06/21 Date of Next Meeting if appropriate SA
Discussion
Lead
Item Subject Discussion Lead Document(s)
No. Attached
15/22 Apologies SA
16/22 Matters Arising From Last Meeting SA
17/22 Global Burden of Disease Study on Dementia Prevalence - implications for population health Please read link to the paper below. Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019 - The Lancet Public Health SA
18/22 Capacity Bill - Advance Consent Department meeting 6 December - Capacit SA
19/22 Updates on Transformation SA
20/22 ANP Referrals SA
21/22 Any Other Business SA
22/22 Date of next meeting: Wednesday 27th April 2022 at 4.30 pm
Discussion
Lead
Actions Delivery Date Owner
1. Invest a further £70 million to expand Long COVID treatment and rehabilitation 21/22 NHS England and NHS Improvement
2. Invest £30 million in the rollout of an enhanced service for general practice to 21/22
support patients in primary care
3. Publish information about waiting times of post-COVID assessment services to September 2021
ensure transparency
4. Evaluate post-COVID Assessment Clinics to obtain the lessons learned from set up Ongoing
5. Ongoing review of the Long COVID clinical pathway to reflect the latest research evidence and operational experience Ongoing
6. Extend the use of the Your COVID Recovery online rehabilitation platform August 2021
7. Use data tools showing take up by gender, ethnicity and deprivation, against expected prevalence. July 2021
8. Partner with National Voices, Asthma UK/British Lung Foundation and other Voluntary, Community and Social Enterprise Sector organisations to engage with communities more likely to be impacted by health inequalities. Summer 2021
9. Appoint six Patient and Public Voice Partners to provide advice on lived experience to the programme May 2021
10. Carry out a Health Equity Audit to assess the degree to which we achieve our vision of equitable access, excellent experience and optimal outcomes for all communities. Summer 2021
11. To improve accessibility of information we will ensure ‘easy read’ and printed versions of Your COVID Recovery materials are accessible, and that translations in over 100 languages will be available. August 2021
12. Promote good clinical practice through the national learning network on Long COVID for healthcare professionals Ongoing
13. Further develop resources on FutureNHS platform to provide educational materials and enable information sharing across healthcare organisations and staff Ongoing
14. For NHS staff, comprehensive support for health and wellbeing including mental health hubs, rapid referral to services, local occupational health and online wellbeing resources will be available. June 2021
15. All local NHS systems will have submitted to NHS Regions, fully staffed Long COVID service plans covering the whole pathway from primary to specialist care 12 July 2021 Integrated Care Systems
16. Local NHS systems will include planning to ramp up Your COVID Recovery supported patient-self management in their Long COVID service plans July 2021
Local NHS systems will include planning to ramp up Your COVID Recovery
supported patient-self management in their Long COVID service plans
17. Long COVID services will nominate care coordinators to manage complex cases July 2021
18. Develop standard rehabilitation pathway packages to treat the commonest symptoms of Long COVID July 2021
19. Establish 15 Post COVID assessment paediatric hubs across England July 2021
20. NHS Long COVID activity data on referral, assessments and waiting times for post-COVID assessment clinics and the onward patient journey including use of Your COVID Recovery will be published monthly September 2021 NHS England and NHS Improvement and NHS Digital
21. A Long COVID digital code will be added to the psychological therapies Minimum Data Set. Summer 2021
22. A Long COVID registry for patients attending the Post COVID Assessment Clinic will be established July 2021
Long COVID services will nominate care coordinators to manage complex
cases
Develop standard rehabilitation pathway packages to treat the commonest
symptoms of Long COVID
Figure 1: Number of people with self-reported long COVID by duration,
UK: 6 March 2021 and 2 May 2021
Period Duration Estimate
Data to 6 March 2021 Less than 12 weeks 309
At least 12 weeks 697
At least 12 months 70
Data to 2 May 2021 Less than 12 weeks 66
At least 12 weeks 869
At least 12 months 376
Source: Office for National Statistics
NHS England and NHS Improvement will provide a further £70 million to
expand Long COVID services beyond Post-COVID Assessment Clinics to
strengthen treatment and rehabilitation for Long COVID. Additional funding will
be provided to ICSs adding to the £24 million already provided to 89 specialist
Post-COVID Assessment Clinics around England, bringing the total investmen
in 2021/22 to £94 million.
To increase knowledge on identifying, assessing, referring and
supporting patients with Long COVID:
evolves
this may involve learning at different levels of expertise within the team
different professionals in the team are likely to have different learning needs
prescriber or the health and wellbeing coach)
participation in educational sessions and sharing of learning with system
Educational materials available to all healthcare workers can be found in the
‘Useful information’ section.
history
obtain data, that can be cut by demographic, to understand which groups or
communities are most affected and to identify potential inequities
obtain activity data that can help to guide future service planning
include:
Diagnosis code:
Ongoing symptomatic COVID-19 (4-12 weeks after infection)
Post-COVID-19 syndrome (12 weeks plus)
Signposting to Your COVID Recovery: when signposting patients
to the publicly available Your COVID Recovery website (phase 1)
Referral to post-COVID assessment clinic
Post-COVID-19 syndrome resolved (available from May 2021): to
be used at the patient and clinician discretion when all symptoms
are fully resolved and there is no evidence of persisting organ
impairment or if an alternative diagnosis has been made to
account for all symptoms
assessment services or other specialist services
continuing to code demographic information including ethnicity
By working with the practice Patient Participation Group (PPG) to help
raise awareness of support (such as Your COVID Recovery website)
By working with system partners to help raise awareness of support and
understand any potential barriers to support
Local NHS systems should include a rehabilitation pathway programme in
their Long COVID service plans due mid-July 2021. It should be based on the
principles in the RightCare: Community Rehabilitation Toolkit.
Local NHS systems should include planning to ramp up Your COVID
Recovery supported patient-self management in their Long COVID
service plans due by mid-July 2021.
The Faculty of Occupational Medicine has produced guidance for return to work for
patients with long-COVID
REPE ALS
Short title Powers of Attorney Act 1983 Extent of repeal The whole Act
Powers of Attorney Act 1987 The whole Act
Mental Health Act 1998 Part 7
****** ****** ****** ******
Jurisdiction Age to which capacity determination apply Legal Status Relevant Legislation Scope – Key Points
Isle of Man Proposed 18+ years Legislation proposed but not enacted The Capacity Bill 2021 There is an exception in the MCA where the age is 16+ years is the making of ADRT. Having the age set to 18+ years does present some problems which will need to be addressed. Certain provisions in the Children & Young Persons Act 2001, namely private law orders and care orders, do not apply to children over the age of 16 years and 17 years respectively. This could result in a young person falling into gap between the two pieces of legislation.
England/Wales 16+ years Legally binding Mental Capacity Act 2005 Exceptions in the MCA where the age is 18+ years include making: • LPAs • Statutory Wills • ADRT In most situations, the care and welfare of children under 16 years will continue to be dealt with under the Children Act 1989. There are, however, two exceptions to this: Where the MCA Applies to Children under the age of 16:
• The Court of Protection can make decisions about a child’s property or finances, (of can appoint a deputy to make these decisions), if the child lacks capacity to make to make such decisions within section 2(1) of the Act and is likely to still lack capacity to make financial decisions when they reach the age of 18. • The criminal offence of ill treatment or wilful neglect of a person who lacks capacity applies to children under 16 as no lower age limit is specified for the person caused harm/victim
Scotland 16 + years Legally binding in respect of age to which capacity determination applies Adults with Incapacity Act 2000 “adult” means a person who has attained the age of 16 years. Exceptions in the Adult with Incapacity Act 2000: - Section 79A “Sections 57 to 79 apply in relation to a child who will become an adult within 3 months as they apply in relation to an adult; but no guardianship order made in relation to a child shall have effect until the child becomes an adult.”
Northern Ireland 16 + years Legally binding in respect of age to which capacity Mental Capacity Act (Northern Ireland) 2016 Refusal of specific treatment(s) in specified circumstances (can be made by those with capacity, age 18+) Can extend to life-sustaining treatment
determination applies Legislation partially in force (N.B. Part 9 “Power of police to remove person to place of safety” provisions (which have not yet been brought in) defines “children” as persons under 18 years)
Jersey 16 + years Legally binding Capacity and Self-Determination (Jersey) Law 2016 Exceptions: LPA’s – a person has to be 18+ years
Guernsey 16+ years Legislation not yet in force Capacity (Bailiwick of Guernsey) Law 2020 Court may exercise powers for children under 16 if the Court considers it likely that P will still lack capacity to make decisions in respect of that matter when P reaches 16.
Republic of Ireland 18 + years Legally binding in respect of age to which capacity determination applies. Legislation partially in force The Assisted-Decision Making (Capacity) Act 2015 was signed into law in 2015 but has not yet come fully into force. The legislation is currently being used as a “best practise” guideline.
Jurisdiction Type of Advance Decision/ Age which it applies Legal Status of Advance Decision Relevant Legislation Scope – Key Points
Isle of Man Advance Decision to Refuse Treatment (ADRT) Current law 18+ years ------------------------- Proposed law 16+ years Legally binding ----------------------- Legislation proposed but not enacted Common law --------------------------------------------------------- Capacity Bill 2021 -------------------------------------------------------- The age in which a person can make an ADRT was originally proposed 18+ years, however a policy decision was made to change the age to 16+ years to align with provisions in the Family Law Reform (Isle of Man) Act 1971, which recognises consent of a person aged 16 and 17 years.
England/Wales Advance Decision to Refuse Treatment (ADRT) 18+ years ------------------------- Legally binding -------------------------- Mental Capacity Act 2005 --------------------------------------------------------- MCA 2005 applies to those age 16+ (ADRTs can be made by those with capacity, age 18+) Refusal of specific treatment(s) in specified circumstances Can extend to life-sustaining treatment (must be in writing) --------------------------------------------------------
Scotland Advance Directive/Decision 16+ years -------------------------- Legally binding -------------------------- No statute, but Adults with Incapacity Act 2000 – account must be taken of present and past wishes of the adult as far as they can be ascertained by any means of communication (Section 1(4a)) -------------------------------------------------------- Refusal of specific treatment(s) in specific circumstances (can be made by those with capacity, age 16+) Can extend to life-sustaining treatment -------------------------------------------------------
Northern Ireland Advance Decision (current law) 18+ years ------------------------- Advance Decision (proposed law) 18+ years Legally binding ------------------------- Legally binding No statutory provision (case law applies) ----------------------------------------------------- Case law continues to apply - no statutory provision, but statutory recognition in Mental Capacity Act (Northern Ireland) Act 2016 Refusal of specific treatment(s) in specified circumstances (can be made by those with capacity, age 18+) Can extend to life-sustaining treatment -------------------------------------------------------- As above
Jersey Advance Decision (current law) 16+ years ---------------------------- Legally binding -------------------------- Capacity and Self-Determination (Jersey) Law 2016 --------------------------------------------------------- Can extend to life sustaining treatment --------------------------------------------------------
Guernsey Advance decision 16+ years Legislation not yet in force Capacity (Bailiwick of Guernsey) Law 2020 Can extend to life sustaining treatment
If the assessment of the patient’s
allergy history falls does not fit into
the categories in the referral form
If the assessment of the patient’s
allergy history falls meets the
criteria
• GP to inform patient
that it is safe for them
to receive mRNA
vaccination and the
patient can register to
be vaccinated with
mRNA vaccine
• send completed form by
email to vaccination team
vaccinations@gov.im
• GP to inform patient that
member of 111 team will
contact them
Patient previously received OAZ in ED
setting but did not have Anaphylaxis.
In all cases where vaccination is
requested by GP outside of allergy
criteria IE another medical reason.
Refer to Dr Keeling for further
assessment
• Appointment
booked to receive
OAZ by 111
• Can be vaccinated in hub
setting.
• Appointment booked to
receive OAZ in hub setting by
hub team
Patient’s name
Date of birth
Address of patient
Daytime telephone number
Name of patient’s GP
Name of GP Practice
Signature of Medical Clinician completing assessment (print name below)
Date:
Item Subject Discussion Document (s)
No. Lead Attached
76/23 Apologies for Absence Chair
77/23 Review notes/Matters arising from previous meeting Chair  Draft notes CAG.docx
78/23 Review of Action Log Chair  CAG Action Log 2023.xlsx
79/23 IT and operational performance data analytics Chair/JV Verbal
80/23 Urgent/non urgent pathways for discussion Chair Verbal
81/23 Updated TOR for review Chair DRAFT Terms of Reference Clinical Ad
82/23 Referrals Chair Verbal
83/23 Medicines Policy for information/review Chair  23-11 Medicines Policy - V5 All chang
84/23 AOB Chair
85/23 Date of next meeting: Wednesday, 20 December 2023 @ 1600 hrs Chair
Topic Page No.
General Guidance 2
Patient Access to Services 2
Staff – Returning to Work following Travel 2
Visiting Staff/Keyworkers 3
Close Contacts – Patients and Staff 3
Lateral Flow Devices 4
Providing treatment to patients 5
Dental Services 5
Orthodontics (Hospital) 6
Orthodontics (Primary Care) 6
Dental Laboratories 7
Opticians 7
General Medical Services 7
Community Nursing 8
Diabetes and Endocrine Service 9
Prison Healthcare Service 9
Pharmacy 10
Primary Care Back Office Function 10
Covid-19 Questions Appendix 1
Covid-19 Guide for Staff if identified as a ‘close contact’ Appendix 2
Staff Guide – Positive for Covid-19 Appendix 3
Root Cause Analysis Appendix 4
Staff High/Low Risk Contact Record Sheet Appendix 5
Lateral Flow Device Stock Order Form Appendix 6
GP Consultations (F2F) Appendix 7
PPE Recommendations – Primary, Community, Social Care PDF
PPE and Lateral Flow Device Stock Order Form (Manx Care) PDF
Lateral Flow Device Stock Order Form PDF
Terms of Reference This RCA is being undertaken to:
Records Reviewed:
Date of Incident:
Incident Type: Brief Description
Reported By: Date Reported:
Roles of Individuals Involved:
Summary of Events
IPC Support Summary
Date Person(s) Involved Action
Contributing Factors
Root Cause
Recommendations
RCA Completed By: Date:
Name of Reporting Manager:
Care Group: Integrated Primary and Community Care
Area/Service:
Contact Number for Area/Service:
Name Area High/Low Risk Date Advised to Follow Flow Chart Date of End of Isolation
Item Pack Size Qty Requested Qty Supplied Comments
Lateral Flow Device Each
Positive blood culture report received by Infection
Prevention Nurses, initial information obtained
Consultant Microbiologist emails the details of results to the responsible
Consultant / GP within 1 working day requesting the provision of a root
cause analysis (RCA) within (3 working days)
 Consultant to organise a review with clinical teams with IPCT
support and complete the report with lessons learnt and action
plans within 3 working days
 Datix to be immediately updated with outcome of investigation and
actions attaching Root Cause analysis/PIR documents by incident
manager
 Review to be discussed at the care group’s next triumvirate meeting
and reported into the Patient Safety and Quality Committee
assurance report and the Infection Prevention and Control
Committee
Action Yes No Date completed Reason for Variance
1 Lead Nurse Infection Prevention and Control ( IPC ) informed of incident of a positive blood culture result upon receipt of result by medical team
2 Email request for post infection review(PIR) /Root cause Analysis (RCA) sent by the Consultant Microbiologist within one working day of positive result
3 Datix completed when result received Datix reference (insert here)
4 Post infection review/root cause analysis completed within 3 working days of the result
5 A member of the IPC team attended to support review
6 Datix updated immediately following review by Incident manager attaching the PIR/RCA documents
7 Lessons learnt and action plan discussed at Care Group Triumvirate Meeting
8 PIR/RCA Reports submitted to PSQ and IPC team
9 Audit completed within one month of reviews being undertaken
10 Compliance audit reported to the IPC Committee
Item No. Subject Discussion Lead Document(s)
Attached
12/21 Apologies Annmarie Cubbon John Snelling SA
13/21 Minutes of the meeting held on 12 August 2021 All
14/21 Impact of new Clinical Pathways on Patient Care in Community – MSK / Frailty/Diabetes
15/21 Establishing Joint Prescribing Committee to Underpin Shared Care Guidance
16/21 Advice and Guidance Support on LTCs
17/21 Updates from GPs on Transformation Programmes
18/21 End of Life Care and Advance Planning
19/21 Bloods/Forms and Primary Care undertaking Secondary Bloods AC/MP
20/21 Date of Next Meeting: TBA
Discussion
Lead
Item No. Subject Discussion Lead Document(s)
Attached
21/21 Apologies SA
22/21 Guidance to Care and Residential Homes: Community Geriatricians SA
23/21 Primary Care Winter Pressures (SOPs) a) Primary Care Guidance b) GP Living with Covid (SOP) c) GP Winter Workload Pressures (SOP) JS   
24/21 Cranial Arteritis Pathway
25/21 Date of next meeting: Wednesday 27 October 2021 at 4.30 pm
Discussion
Lead
Item Subject Discussion Lead Document(s)
No. Attached
08/22 Apologies John Snelling Ishaku Pam SA
09/22 Matters Arising From Last Meeting SA
10/22 Global Burden of Disease Study on Dementia Prevalence - implications for population health Please read link to the paper below. Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019 - The Lancet Public Health SA
11/22 Capacity Bill - Advance Consent Department meeting 6 December - Capacit SA
12/22 Updates on Transformation SA
13/22 Any Other Business SA
14/22 Date of next meeting: Wednesday 30 March 2022 at 4.30 pm
Discussion
Lead
Item Subject Discussion Lead Document(s)
No. Attached
35/21 Apologies SA
36/21 Minutes of the meeting held on 28 October 2021 SA
37/21 Matters Arising SA
38/21 Primary Care Winter Workload Pressures Standard Operating Procedure (SOP) (deferred from the October 2021 meeting) a) Workable definition to be agreed for the trigger point for implementing the SOP b) Primary Care and Urgent Care liaison when the SOP is implemented SA
39/21 Manx Care Patient Access Policy
40/21 Second doses of Covid vaccines to adolescents (12- 17 years) MR
41/21 Updates on Transformation SA
42/21 CQC Updates SA
43/21 New Updates on Appointments SA
44/21 New Models of Care SA
45/21 Any Other Business SA
46/21 Date of next meeting: Wednesday 22 December 2021 at 4.30 pm
Discussion
Lead
Item Subject Discussion Lead Document(s)
No. Attached
01/22 Apologies Martin Rankin John Snelling Ishaku Pam Juan Corkill SA
02/22 Matters Arising From Last Meeting SA
03/22 Global Burden of Disease Study on Dementia Prevalence - implications for population health Please read link to the paper below. Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019 - The Lancet Public Health SA
04/22 Capacity Bill - Advance Consent Department meeting 6 December - Capacit SA
05/22 Updates on Transformation SA
06/22 Any Other Business SA
07/22 Date of next meeting: Wednesday 23 February 2022 at 4.30 pm
Discussion
Lead
Item Subject Discussion Lead Document(s)
No. Attached
27/21 Apologies SA
28/21 Minutes of the meeting held on 20 September 2021 One amendment requested by JS. Minute reference 23/21(b) Last sentence; replace consolation with consultation. SA
29/21 Matters Arising SA
30/21 Primary Care Winter Workload Pressures Standard Operating Procedure (SOP) a) Workable definition to be agreed for the trigger point for implementing the SOP b) Primary Care and Urgent Care liaison when the SOP is implemented SA
31/21 NHS UKHSA Recommendations to reduce physical distancing and changing pre-procedure testing elective and planned care SA/
32/21 COVID - 19 Pathways a) Surveillance screening for COVID-19 in Hospitals b) Covid-19 swabbing pathway for discharge planning  
33/21 Any Other Business a) Positive Blood Culture Incident Review Process
34/21 Date of next meeting: Wednesday 24 November 2021 at 4.30 pm
Discussion
Lead
Reader Information
Primary Author / Contact Details
Original Publication Date 3.03.21
Last Review Date
Next Review Date 3.03.22
Target Audience All Emergency Department staff All Ambulance staff Infection Control Team Hospital staff
Description This SOP standardises and outlines the way we care for patients who Covid-19 immunisations in the ED for people with significant allergy history at risk of severe allergic reaction to vaccine.
Changes New document
Version Changes Release Date
1.0 O riginal 3/3/2021
1.1 Update to numbers & area of observation
3.4
of the nurse in charge
Item Number Subject Action
General SA advised that the structure and membership/attendance is to be discussed as attendance at CAG meetings by Clinical Directors (CDs) is low. It was noted that due to busy clinical commitments it was understandable CDs were not able to attend all meetings though the lack of clinical ‘buy in’ was a concern. JS stated that clinical ‘buy in’ is important and suggested consideration is given to an honest discussion on low attendance with the days and timing of the meetings to be agreed. JC joined the meeting SA provided an update on the above discussion to JC; JC agreed with the comments made. SA decided to continue with the meeting despite the absence of CDs.
07/21 Apologies Apologies received are noted above.
08/21 CATCH Sites Verbal presentation by Juan Corkill JC reported the following.  Covid Assessment and Treatment Community Hub (CATCH) sites were established in March 2020 for Covid and high risk patients to be seen outside of a GP surgery.  Covid Assessment Treatment Unit (CATU) was established in the Emergency Department of Nobles at the same time.  GP contractual obligations were ‘turned off’. In hindsight this may not have needed to happen.  July 2020, no Covid restrictions apart from borders remaining closed, primary care services resumed normal service.  An outbreak on 31 December 2020 did not result in CATU being resurrected. At that time no GP had had any contact with a Covid patient.  GP infrastructure at that time was affected due to various staffing levels and the possibility that surgeries would have to close. Ballasalla surgery closed for two days in order that a deep clean could take place.  Catch sites initiated again during a short lockdown.
 Discussions on going with Mental Health Services in relation to a shared care
arrangement for Child and Adolescent Mental Health Service (CAMHS). GPs will be paid
£150 pa for each shared care case.
SA asked;
1. Are the number of patient’s attending hot sites increasing?
 Problems are not GP or Nobles; Manx Care to work as a team with clients/patients at the heart.  Establishment of a joint prescribing committee to be discussed at the next CAG.  Discuss at the next CAG the suggestion that GPs and Specialties are rotated. Begin to work together to get to the strategy stage.  Any operational delivery of care will be underpinned by finance.
09/21 Covid-19 Pathways Not discussed due to time constraints.
10/21 Any Other Business a) Results Acknowledgement Not discussed due to time constraints. There being no further business the meeting closed at 5.34 pm.
11/21 Next meeting: Wednesday 18 August 2021 at 4.30 pm on MS Teams.
Item Subject Action By
No.
54/22 Apologies for Absence • • Michele Moroney • • Andre Risha •
55/22 Universal mask wearing in healthcare settings Update • Ongoing discussions
56/22 CQC and Safe Prescribing- DMARDS/Cytotoxic in particular • To be discussed by SA/JS/OE and brought back to CAG next month. SA/JS/OE
57/22 AOB • None
58/22 Date of Next Meeting 29/06/22 @ 1630 hrs via Teams
Item Subject Discussion Lead Document (s)
No. Attached
104/22 Apologies for Absence • Martin Bracewell • • • Lakshman Paudyal • SA
105/22 Matters arising from previous meeting SA NOTES CAG Agenda 05Oct22.V2.
106/22 Advice and guidance lines SA
107/22 Shared care SA
108/22 Job planning update SA
109/22 Testicular Torsion protocol for approval AR  Manx care SOP for suspected Testicular T
110/22 PICC Policies – updated Review and ratification sought by Matthew Mustain & Graham Lloyd Brandrick SA PICC (Cook) policy 2022.doc  PICC (Bard Groshong) policy 20
111/22 AOB SA
112/22 Date of Next Meeting: Wednesday, 7th December 2022 @ 1600 hrs SA
Item No. Subject Discussion Lead Document
(s)
Attached
97/22 Apologies for Absence • Balakrishnan Venkitasamy • Lakshman Paudyal • • Martin Rankin SA
98/22 Matters arising from previous meeting SA
99/22 Guidance on how to manage patients who cannot have a mRNA vaccine as a booster SA
100/22 Interpretation of JCVI Guidance re children 5/11yrs SA
101/22 Draft Policy – Testing for COVID in ICU
102/22 Alteplase EV
102/22 AOB Medicinal Cannabis - update SA
103/22 Date of Next Meeting: Wednesday, 2nd November 2022 @ 0800 hrs SA
Item
No.
Discussion
Lead
Item Subject Discussion Document (s)
No. Lead Attached
23/22 Apologies for Absence • Venkitasamy Balakrishnan • Maria Bell • • • • Michele Moroney SA
24/22 Matters Arising from last meeting SA
25/22 Policy – Clinical guidelines for seeking second opinion SA
26/22 Policy – Open & Upright MRI prior approval SA
27/22 AOB SA
28/22 Date of Next Meeting 27/04/22 @ 1600 hrs via Teams? SA
Item Subject Discussion Document (s)
No. Lead Attached
63/22 Apologies for Absence • • SA
64/22 Matters arising from previous meeting (Notes/Actions attached) SA
65/22 AOB SA
66/22 Date of Next Meeting TBC SA
Item Subject Discussion Document (s)
No. Lead Attached
45/22 Apologies for Absence Lakshman Paudyal SA
45/22 Matters Arising from last meeting (No minutes taken) SA
46/22 Monkeypox update
47/22 NICE/TA update SA
48/22 AOB SA
49/22 Date of Next Meeting 29/06/22 @ 1630 hrs via Teams SA
Item Subject Discussion Document (s)
No. Lead Attached
67/22 Apologies for Absence • Venkitasamy Balakrishnan • Michele Moroney • SA
68/22 Matters arising from previous meeting (No notes taken)
69/22 NICE TA Access Scheme Commissioning Policy and SOP SA/ NICE TA Access Scheme Commissioni NICE TA Access Scheme Standard Ope
70/22 Universal mask wearing SA
71/22 Monkeypox update
72/22 AOB SA
72/22 Date of Next Meeting Wednesday, 20 July @1700 hrs SA
Item Subject Discussion Document (s)
No. Lead Attached
90/22 Apologies for Absence • • Balakrishnan Venkitasamy SA
91/22 Matters arising from previous meeting SA  CAG notes 24Aug22.docx
92/22 Regular asymptomatic testing - to consider and provide advice on Covid testing and also universal mask wearing.
93/22 Cannabis paper MB To follow
94/22 Update on NICE TA Drugs SA
95/22 AOB SA
89/22 Date of Next Meeting: Wednesday, 5th October @ 1600 hrs SA
Item Subject Discussion Document (s)
No. Lead Attached
01/24 Apologies for Absence Chair
02/24 Review notes/Matters arising from previous meeting Chair  CAG DRAFT Notes December23.docx
03/24 Review of Action Log Chair  CAG Action Log 2024.xlsx
04/24 Final DN CRP Policy Provided by for information – he is unable to attend this meeting but advises the wording has been amended in 2.9 Chair  Final 2023 DNACPR policyV2.docx
05/24 Advice & Guidance Policy Update to be provided by Verbal
06/24 AOB Chair Verbal
07/24 Date of next meeting: Wednesday, 14 February 2024 @ 1600 hrs Chair
Item Subject Discussion Document (s)
No. Lead Attached
08/24 Apologies for Absence Chair
09/24 Review notes/Matters arising from previous meeting Chair CAG DRAFT Notes 16.1.24.docx
10/24 Review of Action Log Chair CAG Action Log 2024.xlsx
11/24 Immunisation Committee Covid vaccination associated ribosomal frameshifting & Influence of seasonality vs PHIs on Covid Attached to be presented by for discussion/action COVID vaccination-associat influence of seasonality vs PHIs o
12/24 Pathology Audit Report Report presented by for discussion/action 055SEP22 3YC PATH 2022-25 Core Audit -
13/24 TLS Policy Presented by Dr V B Krishnan (VBK) for agreement/ratification VBK Noble's TLS Policy Jan 2024.docx
14/24 End of Life Care CQC Actions Discussion following circulation of attached Action Log Chair End of Life Care CQC Actions January 2024.
15/24 DNA CPR Policy – for information advises: This is not an interim policy it is Manx Cares existing DNACPR policy which has been in place since 2011/12 The process for its review is through Resuscitation Committee and Operational Clinical Quality Group’s for Health & Social Care. I have taken on board the comments from CAG and amended the policy in line with the request. The policy is on the agenda for the resus committee on Monday 12th February and it will then be taken to the next Operational Clinical Quality Group’s for Health & Social Care. The wording used in this policy is taken directly from ‘Decisions Relating to Cardiopulmonary Resuscitation’. Guidance from the British medical Association the Resuscitation Council (UK) and the Royal College of Nursing (RCN) 3rd Edition published by The Resuscitation Council (UK) (2016) (attached). Feedback & comments attached. Chair Final 2023 DNACPR policyV2.pdf Decisions Relating To CPR.pdf
16/24 Radiology on call policy – For discussion Radiology On Call Policy.docx
17/24 AOB Chair Verbal
18/24 Date of next meeting: Tuesday, 12th March 2024 @ 1700 hrs Chair
Item Subject Discussion Document (s)
No. Lead Attached
26/24 Apologies for Absence Chair
27/24 Review notes/Matters arising from previous meeting Chair CAG Agenda DRAFT notes.pdf
28/24 Review of Action Log Chair CAG Action Log 2024.xlsx
29/24 Emergency Brain Pathway Policy Update of Primary Care Pathway by & Markie Chestnut (MC) /MC Emergency brain pathway FINAL draft 2
30/24 Amendment to Waiting List validation letter – to include questions regarding patient current medical status to assist Harm Review process Presented by
31/24 Immunisation Committee Covid vaccination associated ribosomal frameshifting & Influence of seasonality vs PHIs on Covid As per previous meetings this to be represented by for discussion/action. (Circulated in advance to CAG membership for feedback with attendance from Public Health requested) Public Health invited to CAG meeting. COVID vaccination-associated influence of seasonality vs PHIs o COVID-19 vaccines & AESI.pdf
32/24 Recommended Guidelines for Primary and Secondary Care Interface OE/JC 66.24b Interface report.pdf
33/24 AOB Chair
34/24 Date of next meeting: Tuesday, 14th May 2024 @ 1700 hrs Chair
Item Subject Discussion Document (s)
No. Lead Attached
54/22 Apologies for Absence Michele Moroney Bala Venkitasamy Andre Risha Tentative SA
55/22 Universal mask wearing in healthcare settings Update SA
56/22 CQC and Safe Prescribing- DMARDS/Cytotoxic in particular AC/JC
57/22 AOB SA
58/22 Date of Next Meeting 29/06/22 @ 1630 hrs via Teams SA
Item Subject Discussion Document (s)
No. Lead Attached
82/22 Apologies for Absence • Michele Moroney • Balakrishnan Venkitasamy • Lakshman Paudyal • SA
83/22 Matters arising from previous meeting SA  CAG Draft Notes 27Jul22.docx
84/22 GP Prescribing CQC and Safe Prescribing- DMARDS/Cytotoxic in particular SA  bma-prescribing-in-g eneral-practice-april-2
85/22 Shared Care MC/IP
86/22 Decision making pathway for management of patients being tested for MPX (policy for ratification) DM  Decision Making Pathway for Managem
87/22 Cannabis SA
88/22 AOB • Withdrawal of mandatory mask wearing • Regular meeting day/time SA
89/22 Date of Next Meeting: Wednesday, 21st September @ 1600 hrs? SA
Item Subject Discussion Document (s)
No. Lead Attached
38/22 Apologies for Absence Ishaku Pam Martin Rankin Maria Bell Juan Corkhill Partha Vaiude SA
39/22 Matters Arising from last meeting (No minutes taken) SA
40/22 ‘Bouncing’ of referrals JS
41/22 Rheumatology referral for possible Axial SpA JS
42/22 Preferred day & time for future meetings SA
43/22 AOB SA
44/22 Date of Next Meeting 29/06/22 @ 1630 hrs via Teams SA
Item Subject Discussion Document (s)
No. Lead Attached
29/22 Apologies for Absence • Ishaku Pam • • • Martin Rankin (partial attendance) • John Snelling SA
30/22 Matters Arising from last meeting SA  DRAFT CAG Minutes- 06Apr22.docx
31/22 Policy – Clinical guidelines for seeking second opinion SA  DRAFT POLICY Clinical Guidelines for
32/22 Policy – Open & Upright MRI prior approval SA  DRAFT POLICY for Open & Upright MRI r
33/22 Job Planning SA
34/22 New roles – Medical Directorate SA
35/22 CD Role for diagnostics SA
36/22 AOB Updated Covid guidance
37/22 Date of Next Meeting 25/05/22 @ 1630 hrs via Teams? SA
Item Subject Discussion Document (s)
No. Lead Attached
73/22 Apologies for Absence • • John Snelling • Adrian Dashfield • Martin Rankin SA
74/22 Matters arising from previous meeting SA
75/22 Revised AGP List  Draft amended AGP list.docx
76/22 Referral to Tertiary Care by GPs SA
78/22 Second Opinion Policy Final review prior to EMC SA  Second Opinion Policy (Draft).pdf
79/22 Upright MRI Policy Final review prior to EMC SA  Upright MRI Policy (Draft).pdf
77/22 Nuclear Medicine Proposal PV  77.22 Nuclear Med Paper.pdf
80/22 AOB SA
81/22 Date of Next Meeting: Wednesday, 24August @ 1600 hrs SA
Item Subject Discussion Document (s)
No. Lead Attached
59/22 Apologies for Absence • Venkitasamy Balakrishnan • Maria Bell • Ishaku Pam • Martin Rankin • Tentative • Vanina Finocchi SA
60/22 Matters arising from previous June meetings (Notes/Actions attached) SA CAG Notes with presentation 07Jun22 CAG Actions 22Jun22.docx
60/22 NHS Update – Changes to mask wearing in hospitals SA Key NHS Updates.docx
61/22 NICE TA Access Scheme Commissioning Policy NICE TA Scheme Standard Operating Procedure (includes application form at Appendix 1). Comments required in advance of operationalization and ratification. SA NICE TA Access Scheme Commissionin NICE TA Access Scheme Standard Ope
62/22 AOB SA
63/22 Date of Next Meeting 06/07/22 @ 08:00 hrs via Teams SA
Item Subject Discussion Document (s)
No. Lead Attached
24/23 Apologies for Absence • • • Dr Martyn Bracewell • Dr Lakshman Paudyal • • • Chair
25/23 Review notes/Matters arising from previous meeting Chair  DRAFT CAG Notes 15Mar23.docx
26/23 Review of Action Log Chair  CAG Action Log.pdf
27/23 Waiting list validation paper  Waiting List Validation Paper for
28/23 Golden Rules for review ( /Andre Risha) AR  Golden Rules V3.pdf
29/23 AOB Chair
30/23 Date of Next Meeting Wednesday, 17th May @1600 hrs Chair
Item Subject Discussion Document (s)
No. Lead Attached
113/22 Apologies for Absence • Vanina Finocchi SA
114/22 Matters arising from previous meeting SA  Draft Notes CAG Agenda 02Nov22.doc
115/22 Review of Action Log SA CAG Action Log.xlsx 
116/22 Non portable venflons
117/22 Shared care protocols for memory clinic - the use and monitoring of anti-dementia drugs
118/22 MGUS Patients VB  HAEM_014_MGUS_G uideline.pdf
119/22 ANP Referrals (Annmarie Cubbon) AC
120/22 PPCI Paper (Will Bellamy) WB PPCI COG Paper.docx 
121/22 AOB SA
122/22 Date of Next Meeting: TBC SA
Item Subject Discussion Document (s)
No. Lead Attached
86/23 Apologies for Absence Chair
87/23 Review notes/Matters arising from previous meeting Chair  DRAFT Notes CAG 22November23.docx
88/23 Review of Action Log Chair  CAG Action Log 2023.xlsx
89/23 Medicines Policy Working Group For information & involvement SH  Manx Care medicines policy wo
90/23 Discharge Issue - E-Discharge & TTO’s For discussion and agreement Verbal
91/23 AOB • Covid Treatment Guideline (See attached) Chair SH  91.docx
92/23 Date of next meeting: Tuesday, 16 January 2024 @ 1700 hrs Chair
Item Subject Discussion Document (s)
No. Lead Attached
07/23 Apologies for Absence • John Snelling • Lakshman Paudyal • • • Ishaku Pam • SA
08/23 Review notes/Matters arising from previous meeting SA  DRAFT CAG Meeting notes 18Ja
09/23 Review of Action Log SA  07Feb23 CAG Action Log.pdf
10/23 Referral letter DF SA/  Referral letter FENTON, Daniel (Mr)
11/23 Delirium Policy SA  Pharmacological Management of Deli
12/23 AOB SA
06/23 Date of Next Meeting: Wednesday, 15th March @1600 hrs SA
Item Subject Discussion Document (s)
No. Lead Attached
01/23 Apologies for Absence • Lakshman Paudyal • • • • Vanina Finocchi • Martin Rankin • • Ishaku Pam will be late joining due to another commitment. SA
02/23 Review notes/Matters arising from previous meeting SA DRAFT CAG Notes  Dec22.docx
03/23 Review of Action Log SA CAG Action Log  18Jan23.pdf
04/23 Covid-19 treatment pathways for update SH  MSN_2022_104 Remdesivir 100mg po 22-11 Clinical Guide Therapies for patien 22-11 Clinical Guide therapies for patient 22-11 Clinical Guide therapies for sympto
05/23 AOB Care Home staff COVID Outbreak PCR testing proposed change
06/23 Date of Next Meeting: Wednesday, 15th February @1600 hrs SA
Item Subject Discussion Document (s)
No. Lead Attached
47/23 Apologies for Absence • Dr Ishaku Pam • • Dr Venkitasamy Balakrishnan Chair
48/23 Review notes/Matters arising from previous meeting Chair  DRAFT CAG Notes June23.docx
49/23 Review of Action Log Chair  CAG Action Log 13Jul.23.pdf
50/23 Off island referrals policy (Emma Dancer & Peter Hannay) For information / discussion ED/PH  Off Island Referrals Software System.doc
51/23 Patient Access Policy For final ratification  Manx Care's Patient Access Policy for Elec Clincal Advisory Group 21.6.23.pptx
52/23 Covid-19 treatment guidelines For discussion SH/ 23-05 COVID Guidance 4-1.docx
53/23 Use of cannabis based medicines in acute care SOP has provided some narrative ahead of the meeting:- In consideration of the document, would the Group address the following specific questions: 1. I think the Controlled Drug Accountable Officer (CDAO) should be informed when a patient is prescribed a licensed cannabis based medicinal product. I think the CDAO role is being undertaken by Marina. If Marina is to be informed of these situations, how should the communication be made? 2. If a patient is self-medicating a non-licensed cannabis based medicinal product (the final box in the flowchart), should the CDAO also be informed of this? 3. Does the Group agree with the funding position as described within the yellow box on p5? If not, could they suggest a form of words to replace this line? 4. The position as described is that if a patient has their own unlicensed product, the fact that they use it is recorded (not prescribed) on the chart, and the patient will be allowed to self-medicate if they wish. Do the Group agree with this approach, and if not can they describe their preferred mechanism to allow me to redraft it? SH/ 23-07 v2-1 Manx Care Acute Approach
54/23 Result of vote for change of meeting day/time 10 responses received: 7 in favour and 3 against Chair
55/23 Date of next meeting: TBC
Item Subject Discussion Document (s)
No. Lead Attached
40/23 Apologies for Absence • • Dr Lakshman Paudyal • • Sadha Punniyakodi • • Rehana Zaman • • Dr John Snelling (partial attendance) • Chair
41/23 Review notes/Matters arising from previous meeting Chair  DRAFT CAG Notes 17May23.docx
42/23 Review of Action Log Chair  CAG Action Log 19.06.23.pdf
43/23 Patient Access Policy  Manx Care's Patient Access Policy for Elec
44/23 Private Practice referrals into Manx Care (Marina Hudson) MH
45/23 Kesimpta Pathway approval (Heidi Morris) Chair Manx Care ofatumumab (Kesimp
46/23 AOB Proposal to change day/time to Thursdays at 5pm Voting email to be distributed to CAG membership Chair
Item Subject Discussion Document (s)
No. Lead Attached
14/23 Apologies for Absence • • • • Lakshman Paudyal • • • • John Snelling (Tentative) • SA
15/23 Review notes/Matters arising from previous meeting SA  DRAFT CAG Notes Feb23.docx
16/23 Review of Action Log SA  CAG Action Log.pdf
17/23 Advice & Guidance Policy  Advise and Guidance Policy Manx Care.draf
18/23 Joint Protocol SA  230104 Agenda Item 9.23 Joint Protocol.pdf
19/23 Off licence Tenectaplase use for Stroke Thrombolysis Verbal
20/23 Child Death Verbal
21/23 Biosimilar Policy biosimilar-policy-doc ument-ver-2.pdf
22/23 AOB SA
23/23 Date of Next Meeting: Wednesday, 19th April @1600 hrs SA
Item Subject Discussion Document (s)
No. Lead Attached
31/23 Apologies for Absence • • Dr Ventikasamy Balakrishnan • • • Tammy Hewitt Chair
32/23 Review notes/Matters arising from previous meeting Chair  DRAFT CAG Notes 19Apr23.docx
33/23 Review of Action Log Chair  CAG Action Log 15.05.23.pdf
34/23 Patient Access Policy For introduction ahead of the meeting in June. Narrative from to assist in her absence at this meeting: “You will know that each NHS Trust in England are required to have an established Patient Access Policy, which outlines the roles and responsibilities of each stakeholder involved in a patient’s elective care pathway. Manx Care introduced its first Patient Access Policy for Elective Care in October 2021, with an initial review date of 2023. However with the implementation of the Performance and Improvement team, one of its first tasks was to review and update the policy and bring it more in line with Manx Care and the Isle of Man’s unique requirements. I have built on the initial document (which I can provide if required) and my intention is to show a patient’s referral journey end to end, how Manx Care will manage referrals, including referral routes, offering appointments, DNAs etc. I have included information and links around how the IOM’s legislation affects certain patients, eg veterans, non- residents, private, patients being referred off-island, etc.  Manx Care's Patient Access Policy for Elec
It has been reviewed by a myriad of people, with an expectation that we will all start working towards its implementation. In saying that, I am totally appreciative of the issues we face at Manx Care, but we do need to show our responsibilities and expectations around access to elective care for all parties. I have also created a quick read version (again, available if you would like a copy), which has been through Comms and MCALs, which needs a final review and which will be made available publicly. It is still a working document, so please do not share until is it finalised. has given me to have a slot at June’s Clinical Advisory Group, so I would appreciate it if you could read through this document before then, and let me have your feedback in June. In the meantime, feel free to ask any questions or queries.”
35/23 Isle of Man Ambulance and Aeromedical Services EMC Draft paper for socialising ahead of EMC 26/5/23 (Tammy Hewitt) TH  EMC Draft Paper 26052023 - Isle of Ma
36/23 Private Practice referrals into Manx Care (Marina Hudson) MH
37/23 Terms of Reference Chair Terms of Reference Senior Clinical Advis
38/23 AOB Updated Golden Rules for agreement Chair 2023-05-15 Golden Rules approved V3.d
39/23 Date of next meeting: Wednesday, 21st June @ 1600 hrs
Item Subject Action by:
No.
19/24 Apologies for Absence • • • Dr Rohit Peshin • Dr Dave Hedley • Dr Venkitasamy Balakrishnan • • • •
20/24 Review notes/Matters arising from previous meeting Meeting notes approved CAG Notes 14.02.24.pdf
21/24 Review of Action Log Action log reviewed and updated:  Invite Caryn Cox of Public Health CAG Action Log 2024.xlsx
23/24 Emergency Brain Pathway Policy Presented by & Markie Chestnut (MC) for agreement.
The pathway was created in conjunction with The Walton Centre and is already approved by neurosurgeon and also the Cancer Triumvirate in Manx Care. The aim of the pathway is to provide a good standard of management for patients presenting with suspected primary and secondary brain tumours in the acute setting, ie A&E. The lack of a formalised pathway has resulted in delays in appropriate MDT discussions and onward treatment. MB feels the policy should be actioned in Primary Care, not just A&E. It should be disseminated to colleagues in Primary Care. For a policy to be agreed we should address the wider issues including the use/interpretation of the 2-week wait pathway and neural tumours. JS is in agreement with MB, as many patients present initially in primary care. It would be an opportunity to broaden the presentation in primary and community care. MC acknowledged that there is a gap with Primary Care and are currently trying to find a solution. This will be a topic under discussion at GP cancer day meeting tomorrow (13Mar24) requested clarification of the pathway referring to parenchymal and not to be used for pituitatry/skull based. He also felt it was important something was in place soon. agreed that this would be addressed and advised that from the Walton Centre will provide education for Emergency Dept staff. It was agreed in principal to roll pathway out in secondary care as it specifically relates to secondary care. At the GP’s meeting 13Mar24 a pathway will developed for primary care.  to update at next CAG meeting. Emergency brain pathway FINAL draft 2
24/24 Immunisation Committee Covid vaccination associated ribosomal frameshifting & Influence of seasonality vs PHIs on Covid As per previous meeting this to be represented by for discussion/action. (Circulated in advance to CAG membership for feedback) A detailed summary provided by regarding the 3 papers in question that have appeared over last 3 months. One is a collaborative study looking at possible mechanisms for side effects of Covid 19 vaccines, i.e. off target immune responses. Publicity influence of seasonality vs PHIs o COVID-19 vaccines & AESI.pdf COVID vaccination-associat
around the paper is that the mechanism is to be improved in future vaccines. This improvement not yet done. It is not publicised that up to 1/3 will be off target immune responses which may be auto immune responses. Another paper is an epidemiological study on how much seasonality could affect morbidity and mortality from Covid-19. The remaining paper is concerning evidence of vaccine safety and efficacy however the data reports a number of serious adverse events of interest including, myocarditis, pericarditis, brain damage and Guillain Barre syndrome.  It was agreed to roll over to next meeting for further discussion and bigger audience, including Public Health, to determine how to use this information.
AOB Heparin protocols MH read out correspondence from regarding unfractionated heparin prescription and administration charts for information. The protocols are currently being updated and advice is to search via Sharepoint for current information. IMOG & Medicines Policy MH requested participation and opinions on the Medicines Policy that will be ratified at IMOG in the next 2 months. Volunteers needed from Medicine to be involved in Medicines Management policy and these can be Associate Specialist or non-medical prescribers.  IP to discuss further with Maria Bell and advise IP
25/24 Date of next meeting: Wednesday, 17th April 2024 @ 1600 hrs
Item Subject Discussion Document (s)
No. Lead Attached
56/23 Apologies for Absence • Dr Marina Hudson • • Dr Sadha Punniyakodi Chair
57/23 Review notes/Matters arising from previous meeting Chair  DRAFT CAG Notes July23.docx
58/23 Review of Action Log Chair  CAG Action Log 13Sep23.pdf
59/23 IT and operational performance data analytics Verbal
60/23 Role, remit and responsibilities of the Clinical Service Lead – for update & discussion Verbal
61/23 Joint care arrangements – for update & discussion Verbal
62/23 Medical Gas Policy SH/  Medical Gas policy 2023 ManxCare ver d
63/23 Treatment Escalation Plan Standard Operating Policy To Follow
64/23 AOB
65/23 Date of next meeting: Wednesday, 18 October 2023 @ 1600 hrs
Item Subject Action By
No.
Apologies for Absence • • • • Vanina Finocchi • Martin Rankin • • • • •
02/23 Notes of last meeting approved  CAG Notes Dec22.docx
03/23 Review of Action Log Updates provided and Action Log revised accordingly  07Feb23 CAG Action Log.pdf
04/23 Covid-19 treatment pathways for update presented the attached recommended pathways for Covid-19 patients. One of the hospitalised pathways requires use of the drug Baricitinib. CAG was requested to approve holding stock of this drug specifically for Covid treatment in patients in CCU developing pneumonia. The drug needs to be available should a consultant decide to commence this treatment pathway, as per the guidelines.  MSN_2022_104 Remdesivir 100mg p
IP confirms this would only be for patients at critical care level. This is becoming increasingly rare. also highlighted that recommendations for treatment in the community have changed. Sotrovimab is definitely fourth line but we did use quite a lot of this in December. Molnupiravir is third line and was used more often over the xmas period as patients did not need to come in for injection. (Not as effective as remdesivir.) has circulated the Manx policy for feedback. Actions/Agreed:  1 x dose Baricitinib to be held in stock (for Covid treatment only) to cover possible weekend requirement.  Pharmacy will publish updated pathway guidelines unless feedback received. 22-11 Clinical Guide Therapies for patien 22-11 Clinical Guide therapies for patien 22-11 Clinical Guide therapies for sympto SH/Pharmacy /Pharmacy
05/23 AOB Medical Gas Group intends to resurrect this Group and she will Chair. Medical representation is required so a volunteer would be appreciated. Meetings are quarterly. Adrian Dashfield identified as a candidate. Care Home staff COVID Outbreak PCR testing proposed change The UKHSA guidelines state PCR testing for outbreaks in care homes but staff are not complying. The IPCC team is therefore asking for approval to use LFTs instead. in agreement. agreed LFTs sufficient though it would beneficial to run this past who does the PCRs. Actions/Agreed:  LFTs can be used by staff in care homes  to be asked about false positive rates raised concerns regarding an issue recently experienced with discharge summaries and the suggestion to use Medivewer, just wanted to make sure this is not CAG approved. SA advised this has been passed on to and Chief Clinical Information Officer (Gregor Peden) for investigation. Action: Update to WC upon response from Gregor Peden Equality, Diversity & Inclusion (EDI) SA provided an update regarding EDI strategy and request for EDI champions. Intention to start reverse mentoring, start networks and establish network leads to form a forum. Workforce & Culture teams have been requesting completion of personal details on PiP to have accurate data. Encourage all to complete personal details. /IPCC /IPCC SA
06/23 Date of Next Meeting: Wednesday, 15th February @1600 hrs
Item Subject Action by:
No.
8/24 Apologies for Absence  Dr Ishaku Pam     Dr Rohit Peshin  Dr Dave Hedley  Dr Lakshman Paudyal   Dr Sadha Punniyakodi
9/24 Review notes/Matters arising from previous meeting Meeting notes approved
10/24 Review of Action Log Action log reviewed and updated CAG Action Log 2024.xlsx
11/24 Immunisation committee Two papers presented by for information. The summary of findings in the first paper is a projection that approx. 1/3 people who have been in receipt of an MRNA vaccine for Covid-19 have off target immune responses. Therefore they propose a new way of designing MRNA vaccines but this has not yet been implemented. The second paper is a collaborative study that looked at factors influencing prevalence of Covid-19 infection over the last 2-2.5 years. It shows that vaccination had little impact regarding Covid infection. In summary these papers show the vaccination: A) Does not move needle of infection B) One third people develop off target response questions whether this gives grounds for re-thinking Covid-19 vaccination program? commented that the vaccine is not as effective as expected. We have always followed JCVI perhaps we should put this question to them? advised that the Covid-19 review recommended that decisions regarding vaccination are island specific with a group to be formed. We are ahead of JCVI in considering this new data. MH felt it would be better to have a wider view from the group  Carry over for next CAG LC to ask people to bring comments. COVID vaccination-associate influence of seasonality vs PHIs on
12/24 Pathology Audit report Presented by on behalf of the Clinical Audit Committee. There were points raised in the report that were thought worthy of being escalated to CAG on basis of patient safety. E.g. number of rejected specimens and issue with histology reporting. confirmed that this report was also presented at the Patient Safety Summit by and some actions have been addressed. When comparing against similar hospitals we are quite a way off in terms of transfusion rejections – none in double figures and we are 11%. MH advised that there is an action plan in place, with some actions already undertaken.  will check with on the outstanding actions and provide an update for the next meeting 055SEP22 3YC PATH 2022-25 Core Audit -
13/24 TLS Policy Dr Balakrishnan (VB) presented the policy for agreement/ratification. The policy has been updated and circulated. There have been discussions with CCU and ITU who have agreed for these patients to be admitted firstly to ICU, then ITU with last resort being a medical bed with telemetry facilities. All parties involved have been consulted and have agreed to the policy. Apart from the document format there were no concerns and the policy was approved by the group.  VB to arrange for the policy to be uploaded into Manx Care format before being uploaded to the intranet. Noble's TLS Policy Jan 2024.docx VB
14/24 End of Life Care CQC Actions MH provided an update. Dr Needham will be lead for Palliative Care and with her colleague, Cheryl Young, will be setting up task and finish group to help and implement the EoL CQC actions. CQC had been impressed with what hospice have put in place. Main action required is for Clinical Directors to ensure sure some of the audits take place in the Care Groups. MH has recommended they work with Associate Specialist and Specialist Doctors rather than over loading consultants.
15/24 DNA/CPR Policy Following additional information provided the group agreed this policy. 
16/24 Radiology on call policy requested comments on the Radiology On- call policy. This has been drawn up collectively by Radiologists to avoid unnecessary contact out of hours by Junior Doctors, so that the patients Consultant must be fully aware and available. MH agreed that compulsory consultant to consultant discussion is a welcome decision. advised the policy has been circulated to the CDs and the PCN  MM to put on intranet in Manx Care format. Radiology On Call Policy.docx
AOB  advised he is waiting to speak with Public Health about Research. MH confirmed she raised this at ELT but with the current funding situation we may not be able to fund next year. However it’s importance was agreed.
 raised an issued relating to patient discharge, whereby Consultants only issue a 7-day prescription, with follow up to GP- however letter not received in time. JS thought this related to a long standing, historical problem  to clarify and get support for GP’s to take to CD’s SMc
17/24 Date of next meeting: Wednesday, 12 March 2024 @ 1700 hrs
Item No. Subject Action By:
14/23 Apologies for Absence • • • • Lakshman Paudyal • • • •
15/23 Notes of last meeting approved CAG Notes Feb23.docx
16/23 Review of Action Log Updates provided: 011/23 Delirium Policy IP to engage with other stakeholders – this is expected to take about 8 weeks for ratification CAG Action Log.pdf IP
012/23 GP Summit meeting SA provided update of the work being done by Teresa, Annmarie & Oliver Ellis for Primary Care at Scale. It was agreed that the proposed Summit meeting should still go ahead. SA
17/23 Advice & Guidance Policy presented the draft policy. This had been drawn up to formalise the approach of Advice & Guidance and to provide a uniform specialist service to clinical problems to the non-specialist. The service will be between primary and secondary care and will be embedded in a governance structure. Due to lack of representation at the meeting by GP’s JS requested that this document be distributed to & Oliver Ellis for further comment. Some concerns regarding legal responsibility already raised and confirmed this will be written in to the policy. MB suggested that some of the on-Island speciality consultants follow a practice they have at the Walton Centre whereby dedicated time is given by a consultant each lunch time when GP’s can make contact for relevant advice/signposting. IP raised possible issues with job planning/pa’s, audit trail and demand management (particularly for single handed specialities). To move the process forward it was agreed that JS will arrange for to discuss at a GP discussion meeting. SA noted the importance of getting this policy right, with time being allocated accordingly in job planning. Advise and Guidance Policy Man JS
18/23 Joint Protocol SA presented the draft joint policy with police & coroner regarding notification of deaths. This is still a work in progress so it is presented to CAG for information purposes only. suggested that for item #29 it would be beneficial to include a clinician relevant to the case in the incident group. IP clarified the thinking during the protocol meeting and felt there was latitude to cover this concern. After further discussion it was agreed to pursue this concern 230104 Agenda Item 9.23 Joint Proto SA
19/23 Off licence Tenectaplase use for Stroke Thrombolysis outlined current situation regarding supply of Tenectaplase and Altaplase. It has been identified that there is a risk to run out of Altaplase in the next 3 months. There has been a discussion as to whether Tenectaplase can be used for Ischemic strokes as a thrombolytic agent. It was agreed this was a possibility with preferable
dosage of 0.25 mgs/kg. Studies now support this as effective and just as safe as Altaplase. Liverpool Stroke are happy to authorise this use as long as our CAG team approve the off licence use of Tenectaplase in worst possible scenario and there is nothing else to use. Important that we have this in mind as a policy in case we do run out of Altaplase.
20/23 Child Death SA provided an update on the Child Death policy for information and awareness to CAG. Following 2 child deaths from asthma a few years ago the review panel came up with a lot of recommendations. We are in the process of implementing those recommendations with 90% now done with the Paediatric Department working to finalise.
21/23 Biosimilar Policy presented this policy which is for alternatives to originated drugs for cost savings. (Cost Improvement Program). The idea being biosimilars are equally effective to biologics and people should be using them more. Asking CAG if they are happy with this policy or if amendments required? SA confirmed there is no opposition to the policy itself, it is mainly operational barriers, with no one to lead on gastroenterology being the biggest problem. After discussions with IP it was identified that information for Gastroenterolgy could be gathered through Dr Rakesh Aga and Nurse Practitioner Greg Manning. ACTION Organise meeting between / SA/ IP with , Dr Aga and Greg Manning. biosimilar-policy-do cument-ver-2.pdf SA /
22/23 AOB 10/23 Referral letter DF SA brought back to CAG this item from 15Feb23 meeting due to further debate being required. He re-presented the issue and requested views from CAG on whether they accept that Primary Care physicians cannot refer patients directly to Tertiary Care without the approval of Secondary care, especially if regarding patient choice rather than clinical choice. It was clarified that a second opinion should be sourced on island and enabled by the first consultant. A GP should not be allowed to refer off Island. IP commented that the Second Opinion Policy should answer any questions. He also informed that through the Off Island Referral Group he has details from Jersey of a ‘referral management system’ that will provide an audit trail for funding. An example was given by SA/ of a referral issue in Opthalmology due to no audit trail.
ACTION Information regarding ‘referral management system’ from Jersey to be provided to SA IP
23/23 Date of Next Meeting: Wednesday, 19th April 2023
Item Subject Action by:
No.
1/24 Apologies for Absence • Dr Ishaku Pam • •
2/24 Review notes/Matters arising from previous meeting Meeting notes approved
3/24 Review of Action Log Action log reviewed and updated CAG Action Log 2024.xlsx
4/24 Final DN CRP Policy Provided by for information – he is unable to attend this meeting but advises the wording has been amended in 2.9 SMc asked for clarification if this is an interim policy. MH impressed that this must first be agreed and signed off and then End of Life Care needed to be looked at, of which this is part of. Need to check the highlighted point 6.5 to ensure the correct edit. It was agreed to recirculate, invite comments and bring it back to the next meeting.  Circulate End of Life action Points Final 2023 DNACPR policyV2.docx
05/24 Advice & Guidance Policy updated. Gregor Peden in the process of developing a Sharepoint which is being used as a template. 3 groups (acute oncology, respiratory and Michele Maroney) are going through a several month trial of using this. Will be audited before being rolled out to the whole hospital. RP questioned if Sharepoint is robust enough for everyone to access. Expressed concerns that, Medway for example, is prone to crashing. gave reassurance that it would be audited and feedback gained before being rolled out which JS backed. will update the group when she has more information.
06/24 AOB MH: End of Life Currently no Palliative Lead means we have been unable to make traction which CQC requirements. Cancer Lead is Dr Needham. JS identified the parallel between Hospice Cancer Lead and Palliative Care Lead. JN: A number of meetings held between Hospice, Dr Pam and other nominated members but the group is not yet at ‘next level’. Hospice have provided documentation to help with CQC plan and it has been agreed that Dr Pam would be taking the role of Palliative Lead within Nobles. JN confirmed that she would be happy to take on Palliative Lead, but from May she is taking over as Medical Director of Hospice and stepping back from GP Cancer and palliative role. JN stated that her view is that currently Palliative Care is in greater need than Cancer Services as there is nothing for this. MH asked JN to consider taking in the role as Palliative Lead for Manx Care and gave her backing. Hospice were outstanding in their CQC, Manx Care could learn a lot from them, JN could bring the two together.  JN to discuss with Hospice CEO  JN and MH to take conversation offline MH: Medicines Management Encouraged all to think about what they wanted to bring to the policy as it will be reviewed in 3 months. Active working group now looking at this policy. Policy to come back to CAG before sign off. Research. Governance side needs to be addressed, something to think about. MH to bring up at ELT next week and bring back to CAG for further discussion. identified 2 urgent areas for Manx Care to focus on: 1) R&D Policy, 2) How to handle Money which comes through commercial research. to produce a draft of these for the next meeting. there is a research and ethical committee, Rebecca Rowley runs RND side.  to draft 2 policies and bring back to CAG  to speak to Rebecca Rowley JN JN/MH
07/24 Date of next meeting: Wednesday, 14 February 2024 @ 1600 hrs
Item No. Subject Action By:
31/23 Apologies for Absence • • Dr Ventikasamy Balakrishnan • •
32/23 Notes of last meeting approved CAG Notes 19Apr23.docx
33/23 Action Log reviewed and updated CAG Action Log 17.05.23.pdf
34/23 Patient Access Policy Details presented for noting and discussion at the next meeting when will be in attendance. Manx Care's Patient Access Policy for Elec
35/23 Isle of Man Ambulance and Aeromedical Services OR presented the proposal to bring various patient transport services (ambulance, Bus Vannin, Loganair for patient transfer, air ambulance, GNAAS/HEMS) currently operating under different departments, into one service area. The aim is to develop relationships with tertiary centres and improve the tracking of patients referred off island to assess whether some EMC Draft Paper 26052023 - Isle of M
points of their care can be done here or virtually. (eg diagnostic testing, follow up appointment via telemedicine). Therefore this proposal will bring all these services under one roof and will sit outside the formal care group structure. Tammy Hewitt will be the manager with Will Bellamy as AHP with a new Clinical Lead to be appointed. WB explained one of the reasons for this combined service is to make it more streamlined and fit for purpose with a good clinical governance structure, due to interaction with all areas from primary care to tertiary care. OR further advised that any risks to services have been addressed within the paper. The existing Urgent and Emergency Integrated Care Board (UICC) is to be expanded to include other urgent services to become an integrated group and mitigate risks. TH explained that tertiary care would benefit as it will have closer links to the air ambulance team/services with better, all rounded clinical oversight. There is also the potential for economies of scale in terms of resourcing. In summary it won’t be a formal care group but It will have a governance structure like a care group, with a triumvirate of professional clinical director and a manager. This will actually strengthen the position of the service within the organisation. CAG is supportive of this paper/initiative and happy for this to be taken forward.
36/23 Private Practice Referrals into Manx Care Rolled forward to June meeting as Marina Hudson was unable to attend.
37/23 Terms of Reference The existing terms of reference were reviewed. • Membership to be updated with correct terminology of titles • Public Health to be represented IP
38/23 AOB Updated Golden Rules for agreement After discussion at the previous CAG meeting amendment was needed to incorporate the requirement that referrals from ED to Specialties need to come from a senior decision maker so that they have been vetted accordingly. has now added that provision. CAG approved this amended paper 2023-05-15 Golden Rules approved V3.d
39/23 Date of Next Meeting: Wednesday, 21st June 2023
Item No. Subject Action By:
24/23 Apologies for Absence • • • Dr Martyn Bracewell • Dr Lakshman Paudyal • • •
25/23 Notes of last meeting approved CAG Notes 15Mar23.docx
26/23 Review of Action Log Updates provided and Action Log updated accordingly 19Apr23 CAG Action Log.pdf
27/23 Waiting list validation paper Paper presented by The Validation Team has been set up as part of Restoration and Recovery. Their purpose is to validate/baseline referrals on waiting lists as there are a lot that should not be included. This also links in with harm review, for patients who have waited over 52 weeks. Data is obtained from the hospital dashboard. First of all the referral is technically validated then the team writes to each patient to obtain feedback as to whether they still need to be on the waiting list. The Waiting List Validation Paper for
reason for this presentation is to agree a clinical validation process before removing any referrals from waiting lists. • department is on top of waiting list issue so agreed not to contact any patients on those lists. • asked if anything in place to prevent the backlog building up again. informed that there are work streams in place to take this forward but these can only start once this first piece of the jigsaw is completed. • clarified with that the Validation Team were requesting agreement from CAG for patients to be removed from lists when they fall into the categories identified (Waiting List Validation Team). • confirmed appropriate governance and systems in place and criteria can be tweaked by speciality if required. For DNA’s and cancellations we will show reasonableness and if anyone complains there will be a process in place where the patient can go back to where they were. • advised they (GP’s) do not need to know about cancelled outpatient appointments only discharges. It would be useful to use the NHS Spine system but advises it is a one way flow of information though she will investigate further. In conclusion CAG agrees the validation proposals – will make this a more robust document with governance /SOP and return to CAG. Clinical validation options were then discussed. • in favour of additional clinics to get through the waiting lists rather than to validate clinically. • advised it is difficult to find an effective screening pathway in orthopaedics as examination is required. Contacting all patients on their lists would be a huge task. • AR advised general surgery are doing a lot of extra weekend clinics and virtual clinics and this seems to be successful To conclude will send the question to care groups for discussion at the care group triumvirate and obtain feedback. IP & will work on wording offline.
28/23 Golden Rules for review IP explained that the ED is set up to process approx. 80 patients a day. Over 100 it is not possible to see any others in the waiting room for prolonged periods, therefore causing delays. The Golden Rules were agreed to help improve flow through ED and are used as a guide for doctors, particularly when out of hours. One of the main points is regarding speciality referral and reviews with expectation that on call doctors see referrals within half an hour. Whoever has received the referral then has responsibility to refer to another speciality of not appropriate to them. AR requested this be discussed at CAG. Problems are arising when Junior Doctors are referring unnecessarily. This should be a referral
from a Senior ED Doctor (Middle Grade or above) who has examined the patient. It was agreed that a separate point on the Golden Rules should state that ED referrals are seen or vetted by the Senior Decision Maker in the Emergency Department. Item to be kept on the agenda as IP to discuss with before finalising.
29/23 AOB asked if it was time to re-visit the Terms of Reference for the CAG as there have been changes to purpose and format over the last few years. to circulate the existing TOR for consideration before discussion at the next CAG meeting.
30/23 Date of Next Meeting: Wednesday, 17th May @ 1600 hrs
Item Subject Action by:
No.
19/24 Apologies for Absence    Dr Rohit Peshin  Dr Dave Hedley  Dr Venkitasamy Balakrishnan    
20/24 Review notes/Matters arising from previous meeting Meeting notes approved CAG Notes 14.02.24.pdf
21/24 Review of Action Log Action log reviewed and updated:  Invite Caryn Cox of Public Health CAG Action Log 2024.xlsx LC
23/24 Emergency Brain Pathway Policy Presented by & Markie Chestnut (MC) for agreement.
The pathway was created in conjunction with The Walton Centre and is already approved by neurosurgeon (Walton Centre) and also the Cancer Triumvirate in Manx Care. The aim of the pathway is to provide a good standard of management for patients presenting with suspected primary and secondary brain tumours in the acute setting, ie A&E. The lack of a formalised pathway has resulted in delays in appropriate MDT discussions and onward treatment. MB feels the policy should be actioned in Primary Care, not just A&E. It should be disseminated to colleagues in Primary Care. For a policy to be agreed we should address the wider issues including the use/interpretation of the 2-week wait pathway and neural tumours. JS is in agreement with MB, as many patients present initially in primary care. It would be an opportunity to broaden the presentation in primary and community care. MC acknowledged that there is a gap with Primary Care and are currently trying to find a solution. This will be a topic under discussion at GP cancer day meeting tomorrow (13Mar24) requested clarification of the pathway referring to parenchymal and not to be used for pituitatry/skull based. He also felt it was important something was in place soon. agreed that this would be addressed and advised that from the Walton Centre will provide education for Emergency Dept staff. It was agreed in principal to roll pathway out in secondary care as it specifically relates to secondary care. At the GP’s meeting 13Mar24 a pathway will developed for primary care.  MT to update at next CAG meeting. Emergency brain pathway FINAL draft 2 023.
24/24 Immunisation Committee Covid vaccination associated ribosomal frameshifting & Influence of seasonality vs PHIs on Covid As per previous meeting this to be represented by for discussion/action. (Circulated in advance to CAG membership for feedback) A detailed summary provided by regarding the 3 papers in question that have appeared over last 3 months. One is a collaborative study looking at possible mechanisms for side effects of Covid 19 vaccines, i.e. off target immune responses. Publicity influence of seasonality vs PHIs on COVID-19 vaccines & AESI.pdf COVID vaccination-associate
around the paper is that the mechanism is to be improved in future vaccines. This improvement not yet done. It is not publicised that up to 1/3 will be off target immune responses which may be auto immune responses. Another paper is an epidemiological study on how much seasonality could affect morbidity and mortality from Covid-19. The remaining paper is concerning evidence of vaccine safety and efficacy however the data reports a number of serious adverse events of interest including, myocarditis, pericarditis, brain damage and Guillain Barre syndrome.  It was agreed to roll over to next meeting for further discussion and bigger audience, including Public Health, to determine how to use this information.
AOB Heparin protocols MH read out correspondence from regarding unfractionated heparin prescription and administration charts for information. The protocols are currently being updated and advice is to search via Sharepoint for current information. IMOG & Medicines Policy MH requested participation and opinions on the Medicines Policy that will be ratified at IMOG in the next 2 months. Volunteers needed from Medicine to be involved in Medicines Management policy and these can be Associate Specialist or non-medical prescribers.  IP to discuss further with Maria Bell and advise IP
25/24 Date of next meeting: Wednesday, 17th April 2024 @ 1600 hrs
Item No. Subject ACTIONS Document (s)
Attached
82/22 Apologies for Absence • Michele Moroney • Balakrishnan Venkitasamy • Lakshman Paudyal •
83/22 Matters arising from previous meeting MM present but not recorded - corrected minutes attached SA – extend invitation to CAG to other colleagues? Yes all in agreement  CAG Notes 27Jul22.docx
84/22 85/22 GP Prescribing CQC and Safe Prescribing- DMARDS/Cytotoxic in particular & Shared Care https://www.england.nhs.uk/medicines-2/regional-medicines- optimisation-committees-advice/shared-care-protocols/ SA outlined the issue with shared care where certain drugs initiated by secondary care need to be continued in the community by primary care.  bma-prescribing-in-g eneral-practice-april-2
https://www.england.nhs.uk/medicines-2/regional-medicines-
optimisation-committees-advice/shared-care-protocols/
BMA guidance attached for reference together with a link to the most relevant section provided by Fundamentally, primary and secondary care need to work together but the pathways are not very clear. New pathway work is being done and hopefully when complete this will help. In meantime this should not be a reason why we cannot work with our primary care colleagues and why we cannot work towards the pathway. SA proposed that individual specialists, with specialist drugs send their pathways to CAG for ratification. - Important issue is safe prescribing. We need a monitoring timescale and the ability to go back if there are issues. GMC guidelines very clear. CQC monitoring these situations. Shared care is great but it needs to be agreed and understood. We are raring to go as long as safe, appropriate and resourced. SA - Propose we select individual drugs where shared care is available. Clinician or specialist who wants a shared care policy to write up pathway and bring to CAG on individual basis. MB – offered assistance of her team as they have experience and existing documentation to help. JS - Principle of shared care good and we all agree that it can work. Agree CAG should be conduit through which drawn up pathways are passed. Needs to be looked in a representative way by GP body - is the way through. After discussion it was agreed that suggested pathways could be brought to CAG and then signposted to the relevant Group/Committee. ACTION – pathways All CAG members
86/22 Decision making pathway for management of patients being tested for MPX DM presented pathways for ratification – as per attached 1) Process for positive MPx result from lab. 2) Decision making pathway for management of patients being tested positive for MPx also informed they are due to launch vaccination programme and will keep CAG updated. Agreed unanimously.  Decision Making Pathway for Managem
87/22 Cannabis SA – Expressed his concerns on issues that could arise now that IOM Government has agreed to license the use of medicinal cannabis. What will happen for example if patients are admitted and then ask for their cannabis? We do not know the rules, how to monitor, if any SOP in place. We need to be aware. How do we deal with this risk? Please discuss in your own forums. MB advised a paper has been prepared and is with Manx Care Execs, ie whether to allow in patient settings, residential/care homes etc. Also working on some overview guidance for clinicians. Pilot project due to start in Karsons Pharmacy to dispense private prescriptions only. Somewhat surprised that a private medicinal cannabis clinic is opening – this issue sitting with DHSC as to how to engage and manage that organisation. ACTIONS: Update at the next meeting. MB
88/22 AOB • Withdrawal of mandatory mask wearing SA felt time is right to step down from mandatory aspect of mask wearing - no real rise of infections here or UK supported this argument - we are doing 300-350 swabs per week with return of around 10 positives and under 50 positives in last 6 weeks. Objections received from IP in relation to MGP visitors, and with concerns of staff sickness. It was therefore agreed to continue with mandatory mask wearing and review again in a few weeks’ time. • Regular meeting day/time No objections to late afternoon on Wednesdays so this will continue SA
89/22 Date of Next Meeting: Wednesday, 5th October @ 1600 hrs
Item Subject Actions Document (s)
No. Attached
73/22 Apologies for Absence • • John Snelling • Adrian Dashfield • Martin Rankin • • Adrian Dashfield
74/22 Matters arising from previous meeting / provided an update on Monkeypox • 2500 UK cases • Diagnostics being performed • Some changes in case definitions • No cases to date in IOM • Update of pathway will be sent to CAG for distribution. • Downgrade of biological samples & waste to be treated same as other contagions • Vaccines – 40 available with 20 reserved for staff (GUM)
75/22 Revised AGP List - advised that had revisited the list In line with direction from UKHSA as to what is included/removed from list. There has been removal of certain procedures so our list here has been reviewed. In general this guidance will be followed. However, conclusion states local assessments should be made. Most trusts agreed to follow.  Draft amended AGP list.docx
Any problems thrown up can be discussed with IPC
76/22 Referral to Tertiary Care by GPs SA - opened discussions on this subject. It would save time for GP’s to refer directly to tertiary care. It was initially thought a policy was available. Proposed that we should ask primary care colleagues if and when appropriate to refer to secondary care. What do you think? – it may be possible in some scenarios but not feasible for Paediatrics. Consistently received messages back from Alder Hey etc., that the first port of call should be hospital team in Nobel’s. PV – With cancer hat on I can see certain disadvantages. We are trying to get geared up for more holistic care so if secondary care are not aware of a diagnosis/when patient comes back to hospital there is a risk the patient will not be supported when secondary care involved at later stage. Not all elements are available in primary care. - historically GPs not able to refer due to funding, logistics, patient transfer. Now we do have patients having tertiary care and we often receive requests. Medical records fully available so don’t accept the argument. In favour of book and select service. - in favour of referring directly for his dept as there is nothing on island. MB - Not common but we do get involved in primary care and when no secondary team to refer back to can cause a bit of chaos. PV - agree & Brain tumour referrals often have to wait for specialists to be on island so agree there are certainly cases and groups that would benefit from direct access. –GPs in UK can refer across different care groups in UK but not IOM Conclusion SA: 1) hasten process of referral from IOM to tertiary care 2) it should not go up in numbers 3) gap is a written policy unique to each speciality Try to fast track our patients – suggests anyone with wait over 18 weeks to be refererred to another medical centre Actions • Bring back to next CAG meeting • Clinical Leads to do policies SA Clinical Leads
78/22 Second Opinion Policy Final review prior to EMC SA – Policy has been discussed in various forms including MSC This is not a luxury but a necessity and right of patient Does anything need to change? – saw concerns from thought missing point. My suggestion is it should go to CD then MD SA - often only single handed specialities, so will need to go off island Agreed to go to EMC  Second Opinion Policy (Draft).pdf
79/22 Upright MRI Policy Final review prior to EMC SA - discussed previously again this will go to EMC. No objections  Upright MRI Policy (Draft).pdf
77/22 Nuclear Medicine Proposal SA – Introduced the paper. At the end of last year HSWI judged our facility not fit for purpose. Paper prepared for the two options: 1) Increase investment in on-Island services 2) Close on-Island service and send patients off island (Liverpool) When this service is requested you need to know if it is the best scan option. Acquiring isotopes on IOM is difficult. My preference to relocate to Liverpool PV - to support the paper discussions held with and . Some patient opinions support the arrangement with Liverpool. is disappointed as not enough governance/patients in place though understands why. happy - since Dec 2021 he has been sending patients to Liverpool and this has gone smoothly. Some pathways changed to accommodate on IOM. Based on numbers and costing it doesn’t make sense to retain service on island. SA - very helpful, thank you - Paediatrics only 2-4% historically important scans done in Liverpool. Carry on with Liverpool.  77.22 Nuclear Med Paper.pdf
SA – In conclusion ok for option 2 (Liverpool)
80/22 AOB None raised
81/22 Date of Next Meeting: Wednesday, 24August @ 1600 hrs
Item Subject Action By
No.
113/22 Apologies for Absence • Vanina Finocchi • • • • Ishaku Pam
114/22 Matters arising from previous meeting provided an update on Covid boosters – it’s felt appropriate to follow lead of Florida and not give boosters below age 15. SA Cannabis – waiting for policy MB advised this is with to finalise  Draft Notes CAG Agenda 02Nov22.docx
115/22 Review of Action Log JS met with & VF so policy for Advice & Guidance is progressing SA Job plan update – c96% published Thinking of new software (Allocate) CAG Action Log.xlsx 
116/22 Non ported venflons Presented by – Non ported venflons introduced two years ago. Anaesthetic dept advised these not fit for purpose due to patient
safety concerns. However, it was introduced and given to every department in the hospital except ICU & theatres. Our opinion as vascular experts was ignored and the process was not correctly followed. Evidence shows it is 3-5 times more expensive, higher infection rate. We have produced a paper to show, especially in emergency situations, non-ported cannulas are not fit for purpose. We therefore proposed to stop use of non-portable venflons. SA – Given the clinical risk we now have it was decided to stop using non-portable venflons and only use the original, portable venflons. – it has going on for 2 years - has been datixed many times and is on the risk register. All CDs agree we should move to ported cannulas. SA sent email instructing that non-portable cannulas be phased out from 12th November 2022 which has not been followed. The producing company also advise these cannulas should not be used on labour wards & emergency trolleys. Very frustrating. WB – Possibly a wider issue as from ED & Ambulance perspective we go to central stores and are provided with these cannulas – so perhaps not filtering down past clinicians to support services team. Happy to work with you and use the ported cannula as per Medical Directors instruction. ACTION: - Instruction to confirm no phasing out but to stop using the non-ported venflons with immediate effect. - Stock to be physically cleared SA /
117/22 Shared care protocols for memory clinic Item deferred to next meeting ( not able to attend)
118/22 MGUS Patients Item deferred to next meeting ( not able to attend)  HAEM_014_MGUS_G uideline.pdf
119/22 ANP Referrals (Annmarie Cubbon) SA – One surgery here is not run by Doctors and there have been instances where consultants have refused to accept the referral from an ANP. The question therefore is 1) is it right for us to refuse ANP referrals 2) what are the standards the ANP’s are expected to adhere to 3) If they are not allowed to refer who should do the referral to consultants? Where does the clinical pathway originate and end? Discussion followed regarding specific cases.
– if a referral is refused purely on the basis that it is not from a doctor then that is wrong. However it is important that the healthcare professional makes use of their internal hierarchy first. SA – advised for the case in question the communicated refusal was because the referral was from an ANP. Discussing it at CAG will show that there is support. SA - discussed further with & JS to obtain their thoughts and viewpoints as GP’s. JS - suggested that any a HP's working as employees of partners in surgeries should have a discussion with the partners. If partners agree they have a particular skill set which allows them to refer independently, then the principle should be that we be sympathetic to that. This general principal that multi-disciplinary referrals are accepted, should be communicated throughout Manx Care. ACTION: send out communication as per JS suggestion. SA
120/22 PPCI Paper (Will Bellamy) WB introduced the paper on PPCI which has arisen as part of the Air Bridge Service for continuation of care, accessing of tertiary services and working with Liverpool. This is the start of a new clinical pathway SOP. Presenting to CAG first for advice, guidance and approval before going before EMC. SA requested further clarification from WB regarding current pathway and if for all heart attack patients. WB confirmed current pathway is for all heart attack patients to go straight to Nobles. The new pathway suggested would be for a specific group of patients experiencing ST Segment Elevation Myocardial Infarction (STEMI) would go directly to Ronaldsway for immediate transfer to Liverpool. SA – No objections it is a big yes from the CAG ACTION – Present to EMC  PPCI COG Paper.docx WB
121/22 AOB A-Streptococcal infections Update by due to current situation - Invasive Group A Streptococcal (IGAS) has seen a rise in scarlet fever cases. They are working closely with Public Health. Information has been cascaded to Primary & Secondary Care. General advice is that GP’s should have a low threshold for antibiotics. Strep A is sensitive to penicillin but in case of allergies Macrolides and Clindamycin are alternatives.
For Secondary Care there should be a low threshold for pulmonary, skin & soft tissue complications leading to necrotizing fasciitis or toxic shock syndrome. Samples will be required. There has been a small outbreak in a children’s nursery in the North, with cases of scarlet fever. In the hospital there have been at least two cases of IGAS. More and more positive throat swabs from community. We are bound to notify public health of any clinical diagnosis of scarlet fever. We appear to be mirroring the situation in the UK with cases on the rise both in hospital and in the community. questioned if the recommendations were for early antibiotic treatment. confirmed to start antibiotics if there is a clinical suspicion, ie high fever, throat, rash as recommended by UKHSA, to prevent developing into complicated infections. In UK 8 children’s death so far LP asked if there is a rapid antigen test available but advised not. Best option is a throat swab. At the end of the meeting had a few additions points: 1) A-Strep – the Green book state one of the vaccines offered for Strep does cover 8 out of 10 that cause invasive disease. to feed back to DHS. 2) ANP referrals - when saying that Non-medical colleagues should avail themselves of their internal hierarchies in judging whether referrals are appropriate and I don't want this to be taken as meaning that that's their only recourse. That's why we have specialist advice and guidance.
122/22 Date of Next Meeting: Wednesday, 18th January 2023 at 1600 hrs
Item Subject Action by:
No.
86/23 Apologies for Absence • Dr V Balakrishnan • Dr M Bracewell • • • •
87/23 Review notes/Matters arising from previous meeting Meeting notes approved  Notes CAG 22November23.docx
88/23 Review of Action Log Action log reviewed and updated  CAG Action Log 2024.xlsx
89/23 Medicines Policy Working Group For information & involvement presented the policy. There is an opportunity for interested parties to be involved with Medicines Policy Working Group.  Manx Care medicines policy wo
Medical representation is welcomed on the prescribing section, unlicensed medicines & high risk scenarios (contact if interested). The aim is to break down the current interim policy in order to have separate prescribing policy, medicines management etc. This will give an administration policy rather than including everything in one document. MH advised that this was also discussed at the recent QSE meeting and assurance was being sought. A request for an update will be made from and Maria Bell (MB) at the next meeting.  To be socialised via PCN for volunteers  MH suggest taking to the CD group to look for volunteers/nominations from each area SMc
90/23 Discharge Issue - E-Discharge & TTO’s For discussion and agreement MH referred to the Golden Patient issue as this is not being identified every day. advised e-discharge is usually a job completed by a junior doctor on the ward however there is no junior doctor cover in ITU so this can cause a delay. MH informed that this is something discussed almost weekly at Clinical Directors (CD) meetings. The key thing is to ensure the e-discharges and TTO’s are completed. Part of the reason to raise the issue of discharges is in relation to pushback received from GP’s because of concern over accuracy. MR expressed concern as there appears to be an inefficient duplication of work for both hospital and for GP. A handwritten TTO is emailed then electronic discharge received much later. As this is something that has to be done surely consultants should insist this has to be done on the day. JS advised this has been discussed extensively at CD meetings and MH confirmed currently we have to work with what we have as there are technical issues with Pharmacy. explained processing in pharmacy has to be on the paper copy. However she will ask one of the pharmacists to re-look at the information going to GPs to see if there have been any improvements, following changes made by Gregor Peden to e-discharge summary. This should provide a more accurate reflection of what is currently happening. MH added that deciphering the handwritten TTO was a big issue raised by Doctors. Unfortunately there is no way to improve this until we have the updated Manx Care Record. Verbal SH
SMc advised that the PCN intends to send back TTO’s with any issues and SH requested that it would be helpful to know how many are coming back so we have a better understanding. After discussion on how best to do this it was agreed that SMc will take the matter back to PCN, finalise form with a process to return to relevant Clinical Director (with Medical Director in cc) MH confirmed that the CD will have responsibility within their Care Group to take up with the Consultant, who in turn will take it up with the Junior Doctor, to obtain correct information and return to the GP. suggested that CAG should instruct CD’s what needs to happen then this can be de-escalated from CAG  MH to raise at the CD meeting group to request they share at their Consultants meeting SMc MH/
91/23 AOB • Covid Treatment Guideline (See attached) provided a reminder that these guidelines are on Sharepoint and requested that junior staff are aware – especially the flow diagram.  91.docx
92/23 Date of next meeting: Tuesday, 16 January 2024 @ 1700 hrs
Item No. Subject Action By:
07/23 Apologies for Absence • John Snelling • Lakshman Paudyal • • • Ishaku Pam •
08/23 Notes of last meeting approved Updates provided: provided a spot update of Covid situation. It was observed that more cases of flu and RSV UKHSA guidelines contine to be followed but these are due for review.  Action: Bring back to CAG in a couple of months EDI – SA has taken on mantle to champion and shape this strategy and will lead on reverse mentoring with workforce & culture team. CAG Meeting notes 18Jan23.docx /
09/23 Review of Action Log No review 07Feb23 CAG Action Log.pdf
10/23 Referral letter DF SA summarised a GP query regarding a patient who has experienced surgical complications and does not want to return to Noble’s. It was agreed that normally a second opinion would be offered within the same department with perhaps escalation to MDT if needed. Patient is entitled to request a second opinion though cannot necessarily dictate to whom they go to get a second opinion. Should try to resolve in house. There is a second opinion policy in place. The difficulty is in the many single consultant specialities within Manx Care. A suggestion was put forward by SA that Primary Care to refer direct to Tertiary Care in certain cases. However felt it was beneficial to have someone on Island, in secondary care, to oversee in case something does go wrong. Discussions followed on individual cases with advice being sought by AR. This led to SA advising that the question to be asked is whether the complaint is valid or not? If valid take further. If not valid reassure patient and say not much we can do. As emphasised by it is important to act in the best interests of the patient and show reasonableness. Accountability is to GMC as well as Manx Care.  Action: Further debate required Referral letter FENTON, Daniel (Mr SA / All
11/23 Delirium Policy New Delirium policy written up by SA however IP advised that the existing policy on Medway is more comprehensive.  Action: The two policies to be reviewed and compared Pharmacological Management of Del IP
12/23 AOB Ballasalla practice/Primary Care SA summarised the current situation with Ballasalla and highlighted the issue that 1% decrease in primary care work will result in 10% increase in hospital. Important that we support our primary care and look for ideas for transformation. Very difficult situation due to the shortage of GPs globally.  Action: Organise a summit/meeting for brainstorming with GPs as we need to work together to find and seek solutions. SA
13/23 Date of Next Meeting: Wednesday, 15th March @1600 hrs
Item No. Subject Action By:
47/23 Apologies for Absence • • • Dr Venkitasamy Balakrishnan • • Dr Lakshman Paudyal • • Miss Rehana Zaman • Dr Ishaku Pam
48/23 Notes of last meeting approved CAG Notes June23.docx
49/23 Action Log reviewed and updated CAG Action Log 19Jul.23.pdf
50/23 Off Island referrals policy Presented by Peter Hannay & Emma Dancer Overview given of the new off island referral policy/data base that should be in place this winter. Essentially this will give control with a Off Island Referrals Software System.doc
central referral point for authorisation. Principal aim of presenting at CAG was for information and to answer any questions. It was agreed that control and oversight is needed to avoid unnecessary referrals off island. Confirmation was given that GP’s will continue to refer firstly on island (or to visiting consultant), and then off island directly if no on island presence (checks in place) but within the scope of existing SLA’s. PH advised the proposals are based on the Jersey model who refer 1/3 of the number of IOM and with a larger population. There will be a full time clinician to look at all cases Peter & Emma will keep the group updated and come back later in the year.
51/23 Patient Access Policy Brought back to CAG for ratification. Various Issues raised for clarification, including: • Secondary care referrals to another speciality or back through the GP? • Grading of referrals • Costs/services covered by Manx Care after private treatment?/Private Patient Policy • Clarification of internal referrals to be provided for Private Treatment once Private Policy produced Group agreed that Patient Access Policy ratified Actions:  Meeting to discuss Private Patients Policy with Tammy Hewitt  Urgent/non urgent pathways to be put on next CAG agenda Manx Care's Patient Access Policy for Elec MH LC
52/23 Covid-19 treatment guidelines Introduced by for information purposes. The guidelines were presented to IMOG earlier this week and basically bring together the separate guidance notes in one document, reflecting the treatment pathways as per NICE guidelines. 23-05 COVID Guidance 4-1.docx
53/23 Use of cannabis based medicines in acute care SOP Presented by who explained this is to be a practical document around cannabis based medicinal products in acute care. I.e., patients initiated on cannabis being admitted to hospital. This SOP allows continuance of cannabis treatment should the clinician think it appropriate. There is a flow diagram to show when and when not to consider allowing patient to self-administer. 23-07 v2-1 Manx Care Acute Approach
clarified that this relates purely to unlicensed products (that hold a specials license) supplied by the patient. It would not be supplied or prescribed by Manx Care. Requesting feedback from the group to the questions posed by The Group had no objections to the policy In answer to the specific questions: • MH as CDAO confirmed she would like to be informed when a patient has a prescribed cannabis based medicine and it was agreed to use DATIX as a way to capture this data for review at IMOG • Wording re funding position to be changed slightly to: ‘The Manx Care position remains that these products would only be funded when a case is made and accepted by a specialist NHS centre.’ • Agreed patients are to self-administer.
54/23 Meeting day/time To facilitate Clinical Directors joining on their scheduled CD day, an alternative day of Tuesday at 5pm was put forward.. From those present it was agreed to stay with Wednesdays at 4pm
55/23 Date of Next Meeting: 16th August 2023 @ 1600 hrs
Item No. Subject Action By:
40/23 Apologies for Absence • • • • Dr Sadha Punniyakodi • • Miss Rehana Zaman •
41/23 Notes of last meeting approved CAG Notes 17May23.docx
42/23 Action Log reviewed and updated Job Plans – MH provided an update: • It possible GP’s may, in the future, require job plans • MH requesting all Speciality Doctors have 2.5 SPA in order to get clinical engagement. • Job planning to be transparent and follow BMA policy • Aim is to have all job plans done prior to summer break • Aim is to support Primary Care same as Nobles Actions: CAG Action Log 19.06.23.xlsx
 Meeting to be held with MH/JS/Care Group Manager to discuss further  Check Job Plan Policy regarding inclusion of Primary Care MH/
43/23 Patient Access Policy Policy presented by who explained this will be a public document based around roles and responsibilities. TC & OR have approved so she has brought to CAG to obtain engagement with clinicians. Opportunity to discuss and raise queries/concerns. would like to ensure that all parties have had time to review the policy and raise any queries. Actions:  Policy to be left with the group to further review then finalise at the July meeting.  Policy to be circulated to consultants to obtain their views Manx Care's Patient Access Policy for Elec IP
44/23 Private Practice referrals into Manx Care (Marina Hudson) MH outlined a psychiatry issue (ADHD referrals) where there is no pathway in Manx Care and no shared care arrangements from private assessments. Is there a procedure or SOP for referrals into the system from private practitioners or should it be from the GP where patients go on the waiting list? If patients stay private they continue to pay for private prescription. There is a shared care agreement in place for under 18’s but not for adults. Therefore there is no way of private patient accessing prescription through NHS. Question raised by Mental Health is if the patient decides to go on the NHS should this come from the GP or from the private provider? put forward an example of Opticians referring directly to Nobles who then send a referral to GP’s for note. GP’s not required to do anything unless something else required after being seen at Nobles. Therefore a mechanism is in place that could be followed for other areas of private practice. VB advised that it is not encouraged the mix and match of private and NHS treatment. suggested speaking with Tammy Hewitt to try to link in with the Private Patient policy.
45/23 Kesimpta Pathway approval (Heidi Morris) In Heidi’s absence advised that this pathway has been adapted from the Walton and has already been through IMOG.  Pathway approved by CAG Manx Care ofatumumab (Kesimp
46/23 AOB Proposal to change day/time to Thursdays at 5pm  Voting email to be distributed to CAG membership
47/23 Date of Next Meeting: 19th July 2023 @ 1600 hrs
Item Subject Discussion
No. Lead
45/22 Apologies for Absence • Lakshman Paudyal SA
45/22 Matters Arising from last meeting (No minutes taken) SA
46/22 Monkeypox update Presentation by “Introduction and suggested action plan for Monkeypox” Copy presentation attached for reference. Monkeypox and IOM Sexual Health A.pptx Q&A session followed. addressed concern raised by regarding paediatric population. Virus categorised as high consequence because we don’t know which way it will go. Three main risks: Pregnant women, immune compromised and children under
12. So far no concern just need to be prepared. SA: What is chance of seeing cases on IOM? Communications going out from Public Health & Manx Care. With high level of alertness most cases will be diverted to GUM. Pathways are in place. The department has been on standby with triage system over weekends. Service ctc Mon-Fri 9-5pm 650710
47/22 NICE/TA update Not discussed
48/22 AOB Bouncing of referals Making good progress on clinical referrals, pathways with each department, especially with diabetes and endocrinology. overarching principals should be same ... SA: I will put this forward again and keep you informed. Job plans SA: pleased with the progress. Individual meetings planned with each Clinical Director.
49/22 Date of Next Meeting 29/06/22 @ 1630 hrs via Teams
Title The Capacity Bill (Phase One) – Direction on policy for the purposes of revised drafting instructions Paper No xx
DHSC Official Sensitive: Commercial ☐ Check the box if paper contains commercial information which may be damaging to the DHSC, IOMG or a third sector organisation if improperly accessed.
DHSC Official Sensitive Personal ☐ Check the box if paper contains personal information relating to an identifiable individual where inappropriate access could have damaging consequences.
Data
Decision ☒ Approval ☒ Discussion ☐ Assurance ☐ Information only ☐
Purpose* (click
appropriate box)
Responsible director and job title Director signature
Author and job title
The director is signing to indicate their approval of the paper and to confirm that any EQIA, QIA or DPIA has been approved.
/ (AGC) Karen Malone (Deputy CEO)
/ (AGC)
Short summary of paper The capacity programme to date, has comprised of two public consultations – the first on policy and principles, and the second on the draft Bill itself. A number of the submissions received in the second consultation, highlighted some complex and legally technical points that have required further work. In addition to the points raised as a result of the consultations, a line by line analysis of the draft Bill is currently being undertaken, and any further policy questions that have arisen, have been examined in detail. This paper reviews the issues from the Bill analysis and also the consultation that we have to date worked through; and conclude with recommendations for the Department to consider and decisions for discussion. Once the Department have considered the points reviewed and recommendations made in this paper, work will continue on the remaining line by line analysis of Parts 3 and 4 together with Schedules 1 – 6 of the Bill.
Crucially, this will include representations put forward by the Attorney General. The Attorney General has raised questions regarding his role and the proposed functions of his Office. Work is underway to address these questions, the outcomes of which, together with recommendations, will be put forward in the next Department paper.
Recommendation(s) That the Department approve the recommendations set out in paragraph 6 of this paper (recommendations).
Engagement with patients/ public/ staff and other stakeholders a) Public consultation on the Capacity Bill 2021 Principles: 21st August 2020 to 2nd October 2020. b) Public consultation on the Capacity Bill: 25th February 2021 to 8th April 2021 c) Lastly, due to the immediate and direct impact that the draft Bill will have on the lives of those who have lost capacity a further consultation ran concurrently to the general consultation on the Bill, specifically aimed at “Hard to Reach” groups.
Has legal advice been received/to be sought (only if required)?
For the purposes of this paper, regarding the inherent jurisdiction of the Court in
relation to minors the Department has sought the advice of the Children and Families
Division of the Attorney General’s Chambers.
Further, subject to the Department agreeing the recommendations proposed, legal
advice will be sought by way of revised drafting instructions; upon being submitted
to the Legislative Drafting Division of the Attorney General’s Chambers.
Links to DHSC Strategic Objectives from 5 year Strategy (click on all boxes that apply)
Greater responsibility; We will help everyone to take greater responsibility for their own health, encouraging
good lifestyle choices.
More care in the community; We will help people to stay well in their own homes and communities, avoiding
hospital or residential care whenever possible.
Improve hospital care; We will improve services for people who really need care in hospital.
Protect vulnerable people; We will provide safeguards for people who cannot protect themselves. Protect vulnerable people; We will provide safeguards for people who cannot protect themselves.
Value for money; We will work to ensure that everyone receives good value health and social care services.
Engagement with patients/
public/ staff and other
stakeholders
Has legal advice been
received/to be sought (only
if required)?
Risk Register
n/a
New strategic risks identified by this report
Resource implications n/a (Note: The Capacity Bill 2022 will have financial implications. The Department will therefore be submitting a paper outlining the financial and personnel implications together with a copy of the Bill to Treasury for approval before it is submitted to the Council of Ministers to seek approval to introduce it into the Legislature.) Finance Signature
Resource
implications
n/a
Financial
Exemptions
Required?
None
Potential conflicts
of interest
Are there any potential stakeholder (e.g. political, PR) considerations? Mental capacity potentially effects everyone in the Island; but particularly the key stakeholders are those that may have lost capacity to make decisions for themselves, health and care practitioners, private sector organisations, voluntary and community sector organisations that provide services to people who may lack the capacity to make decisions as well as the family members of those individuals. Additionally there is, and has been for some time, clear political will to establish a statutory framework for mental capacity. Most recently the Independent Health and Social Care Review Report by Sir Jonathan Michael (18 April 2019) noted that a legislative framework for Capacity should be brought forward without further delay.
Are there any
potential
stakeholder (e.g.
political, PR)
considerations?
Equality Impact Assessment (EIA) n/a (for the purposes of this paper) (Note: an equality impact assessment will be a part of the documentation submitted to the Department seeking approval for the Capacity Bill to be introduced into the Branches of Tynwald.)
Equality Impact
Assessment (EIA)
N/A
Quality Impact
Assessment (QIA)
Data Protection Impact Assessment (DPIA) n/a (for the purposes of this paper). (Note: Engagement with the ICO upon the draft Bill in February 2021)
Data Protection
Impact
Assessment
(DPIA)
Report history a) Capacity Bill – Policy Direction: Next Steps and Publication of the Summary of Responses to the Consultation – 26 January 2021; b) Capacity Bill – Summary of Responses to the Consultation – 11 June 2021.
Appendices (1) Draft Capacity Bill 2021 (v.7); (2) Jurisdiction Table – General age; (3) Jurisdiction Table – Advance Decisions to Refuse Treatment; (4) Jurisdiction Table – Lasting Powers of Attorney.
Departmental or
Ministerial
Decisions
V.1
Version Control
1. Business Objectives
1. Purpose of this paper a) The purpose of this paper is to recommend to the Department certain amendments to the Bill which, if agreed, will inform revised drafting instructions for submission to the Attorney General’s Chambers and ultimately a revised Bill for introduction into the Legislature. b) Specifically regarding the general points detailed below concerning “age” a workshop was convened that included from Manx Care, the Executive Director of Social Care, the Safeguarding Lead, the Head of Adult Social Care, the Principal Social Worker for Children and Families, the Principal Social Worker and the Matron for Mental Health. Regarding the role of Public Health and the provisions of the draft Bill relating to research, communications have been held with the Interim Head and then the Head of Research and Development. Regarding the jurisdiction of the Court in relation to minors, particularly those aged 16 and 17, the advice of the Children and Families Division at the Attorney General’s Chambers has been sought. c) Broadly speaking the proposed amendments are: i. to lower the age to whom the Bill will generally apply to; from 18 to 16; ii. to update the wording regarding personal welfare Lasting Powers of Attorney’s (“LPAs”) to better reflect the scope of their authority; iii. to include statutory provision permitting the Court to make decisions relating to certain property and financial affairs matters for persons under the age of 16, where the Court considers it likely they will still lack capacity in respect of that matter when they reach 18; iv. to set the age at which a person can enter into an advance decision to refuse treatment at 18 (rather than 16); v. to omit those provisions in the draft Bill relating to advance consent to treatment; vi. given that the Public Health Directorate no longer sits within the Department to accordingly update certain regulation making powers in relation to research;
2. Strategic Alignment
The creation of a modern and clear legal framework which safeguards the rights, dignity and wellbeing of individuals who have lost the capacity to make decisions for themselves is integral to the Department’s strategic objective of developing a five year modern, comprehensive legislative programme.
3. Options
n/a (to consider the recommendations set out in paragraph 6 below)
4. Estimated cost and proposed funding source
n/a
5. Benefits
To improve the legal framework for people who may have lost the capacity to make decisions for themselves.
6. Recommendations
The Department is being asked to consider the following recommendations: a) One: that the Capacity Bill should in general apply to those aged 16 and over. b) Two: All references in the Bill to “personal welfare” to be amended to “health and welfare”. c) Three: That the draft Bill should include a provision akin to section 18(3) of the MCA 05, permitting the court to make decisions relating to the property and financial affairs of someone under the age of 16 years, if it considers it likely that the person will still lack capacity in respect of that matter when they reach 18 years. d) Four: That the age at which a person can enter into an advance decision to refuse treatment be 18. e) Five: that the provisions of the draft Bill relating to advance consent to treatment be omitted. f) Six:  Cabinet Office (Public Health) be responsible for making the regulations under clause 42(7) of the draft Bill; and  Cabinet Office (Public Health) be required to consult the Department of Health and Social Care before doing so. g) Seven: that the Cabinet Office “shall” be under a duty to make regulations (rather than a discretionary “may”).
Item No. Subject Action
23/22 Apologies for Absence • Venkitasamy Balakrishnan • Maria Bell • • • • Michele Moroney •
24/22 Matters Arising from last meeting Not discussed
25/22 Policy – Clinical guidelines for seeking second opinion Not fully discussed or approved Roll forward
26/22 Policy – Open & Upright MRI prior approval Not fully discussed or approved Roll forward
27/22 AOB SA started discussion on function & purpose of CAG Important that the group is more effective and engaged. To have shared responsibility and joint accountability To produce effective policies and design new pathways. General agreement that all parties need to be part of processes and policies and be motivated to do so. Maybe include Matrons/Nursing . Action: TOI to be recirculated for review and clarification Action: Investigate cascade of information/communication with SA/ SA
28/22 Date of Next Meeting
27/04/22 @ 1600 hrs via Teams?
Item Subject Action by:
No.
26/24 • Apologies for Absence • • Toyin Amusan • • Dr Alison Hool • Maria Bell • Dr Martin Rankin • • Dr John Snelling • Dr Ishaku Pam
27/24 Review notes/Matters arising from previous meeting Meeting notes approved CAG notes 2024.03.12.pdf
28/24 Review of Action Log Action Log reviewed and updated CAG Action Log 2024.xlsx
29/24 Emergency Brain Pathway Policy
Update of Primary Care Pathway by Markie Chestnut (MC). Brought back to CAG for final approval. MC confirmed updates made to the policy as per input provided by and  Pathway approved
30/24 Amendment to Waiting List validation letter – to include questions regarding patient current medical status to assist Harm Review process Presented by advised that a waiting list validation letter is sent out to all patients on the elective care waiting list after 18 weeks. They are trying to progress ‘Harm’ so the CQC Team has made some suggestions in order to give more weight & framework, with clinical ownership and buy in from the care group teams. After consultation with it was agreed to include a few straight forward questions to the waiting list validation letter. These are to help inform whether to escalate for a more urgent clinical review. RP queried why we writing to the patient to validate themselves? explained it does help with administrative validation when asking has condition improved, etc. VB concerned there would be comeback if the patient requests to come off the waiting list and then further down the line they develop issues. However reassured that they are not taken off the waiting list as this can only be done at clinical validation. Therefore they are sent to relevant clinician as a query, for them to advise. informed the questions being suggested are: • Are you able to continue in your usual lifestyle? • Are all the symptoms you were referred for better or worse? There were no objections to these questions being included.
31/24 Immunisation Committee Covid vaccination associated ribosomal frameshifting & Influence of seasonality vs PHIs on Covid As per previous meetings this to be represented by for discussion/action. (Circulated in advance to CAG membership for feedback with attendance from Public Health requested) Public Health invited to CAG meeting. But no representation forthcoming.  It was agreed to request Public Health to provide comments in writing. These to be shared at the next CAG meeting. COVID vaccination-associate influence of seasonality vs PHIs COVID-19 vaccines & AESI.pdf
32/24 Recommended Guidelines for Primary and Secondary Care Interface Item to be carried forward for presentation at a future meeting when Primary Care can present the proposed policy. advised that she has started another document that fits between the Access policy and the interface document – MOU. She feels the Interface document is very primary care focussed and needs to be more balanced. It needs to be looked at operationally as well as clinically. RP and VBK request that the comments raised by medical consultants from reviewing the Access Policy in medical divisional meeting are collated by Ishaku Pam and . This needs to be looked at before continuing with the Interface Policy.  Report to be obtained for review at the next CAG meeting 66.24b Interface report.pdf MH/
33/24 AOB NICE TA Drugs – RP RP raised concerns about the process of having these approved and the time that could be involved, so looking for an understanding. MH confirmed that the plan is for NICE TA drugs to be approved provided they are cost neutral. However the final decision will be taken after the discussion with DHSC. We will then have a clear explicit communication of which NICE TA drugs can be prescribed and pathway to be used.
34/24 Date of next meeting: Tuesday, 14th May 2024 @ 1700 hrs
Item Subject ACTION
No. By:
104/22 Apologies for Absence • Martyn Bracewell • • • Lakshman Paudyal • •
105/22 Matters arising from previous meeting SA - in future we will put an action log in place NOTES CAG Agenda 05Oct22.V2.
106/22 Advice and guidance lines SA –after Covid it has apparently been increasingly difficult for primary care to contact some of the specialities. Are lines of communication still open for GP’S & Primary care to use?
IP – Important we look at this and come up with a system. Currently no audit trail and considerable amounts of time can be spent on communication that is not allocated in Job Planning. We need a policy and way of channelling enquiries that meets demand from Primary Care but also gives Secondary Care support. JS – Not aware the demand for guidance but we need to find a positive solution. Understand the advice and guidance email addresses per speciality are still available but perhaps not publicised. A variety of contact methods are being used so inconsistent. Difficult to keep an audit trail. SA – recognise this process is not formalised. Asked to advise how his department deals with advice & guidance. – Most requests are now via email or phone calls. We have a dedicated sim since 2021 and have been tracking numbers, etc with information recorded on a spreadsheet. Some requests come through as a letter – difficult to record and audit. There needs to be one or two conduits so people know they will receive an answer within a specified time frame. JS – It would be helpful to work on this model. Advice and guidance at its best and properly audited could be an efficient way to provide collaborative care to the patient. Important we get this right. SA – We don’t appear to have a policy on Advice & Guidance so I will work with & to bring out a policy from what is already available. (In conjunction with JS for Primary Care) Sharing of information under GDPR to be taken into account to keep legal. ACTION – Advice & Guidance policy to be drafted and presented to CAG next month SA / /
107/22 Shared care SA – this issue is ongoing. We need to take one speciality as a pilot and roll out if it works. Too complex and too big to take on all specialities. I suggest we take a speciality where the interaction can be straightforward and use this to establish how it works and any issues. – We need to have resources SA - aware of resource needs Action: SA bring back again with a plan/proposal
108/22 Job planning update SA – this is mainly for secondary care, but I would like to give this update.
139 job plans to approve and publish - when we started at best 60 were published. Last week we had 137 published, so a huge improvement. Not all signed off but it helps to map out capacity and demand. First step very successful. I will update group when we do next steps of sign offs and completion. ACTION: Further update at future meetings
109/22 Testicular Torsion protocol for approval SA – New protocal drafted following 3-4 torsion testes incidents in last 6 months. AR – Following the recurrence of these incidents I’ve worked with Mr Hussain, Consultant Urologist to draft this SOP. BH – Simple one page SOP to make it easy for everyone. Any case with age 12-25 to be considered as a torsion until proven otherwise. Nobody will be criticised for exploring a negative testicle. Basically this is universal protocol followed in all hospitals. VF – raised concerns about not requesting an ultrasound. BH – clarified pointers in the SOP regarding imaging. If presentation is within the 1-12 hours of symptoms imaging should not be attempted. Between 12-24 hrs ultrasound can be considered if readily available. It’s a question of when it should be done. SA questioned if all general surgeons are capable of doing the surgery. BH/AR – confirmed yes Policy approved. Action – policy to be forwarded to EMC Manx care SOP for suspected Testicular T SA /
110/22 PICC Policies – updated Review and ratification sought by Matthew Mustain & Graham Lloyd Brandrick No objections - Policies approved Action: to be forwarded to EMC PICC (Bard Groshong) policy 20 SA /
111/22 AOB
112/22 Date of Next Meeting: Wednesday, 7th December 2022 @ 1600 hrs
Item Subject Discussion Document (s)
No. Lead Attached
50/22 Apologies for Absence Rohit Peshin Bala Venkitasamy Tentative Michele Moroney SA
51/22 Universal mask wearing in healthcare settings SA
52/22 AOB SA
53/22 Date of Next Meeting 29/06/22 @ 1630 hrs via Teams SA
Item Number Subject Action
21/21 Apologies Apologies received are noted above. A general discussion took place on the attendance at these meetings. JS stated that he felt this was the only forum available for senior clinical leaders and it would not function as an effective group if Manx Care was not fully represented. JC agreed. KW joined the meeting at 4.39 pm and explained that she had no camera or microphone available. SA explained that it was important to meet and have the issues discussed. SA suggested that he would look for consensus for future meeting dates and times, perhaps via Doodle Poll. SA
22/21 Guidance to Care and Residential Homes: Community Geriatricians SA stated that the Care Quality Commission (CQC) England forwarded guidance advising that visitors to care/residential homes should be double vaccinated prior to entering the premises. A general discussion followed. The group agreed that it is strongly advised that visitors to care/residential homes should be double vaccinated prior to entry as per CQC advice.
23/21 Primary Care Winter Pressures (Standard Operating Procedures (SOPs)) a) Primary Care Guidance The document, circulated with the agenda, was noted. b) GP Living with Covid (SOP) The document, circulated with the agenda, was noted; it was recognised that the SOP should be read alongside the Integrated Primary and Community Care ‘Living with COVID’ Guidance which sets out relevant procedures to follow generically. JS explained that the SOP relates to the triage of patients to determine on how best they can be managed clinically. The SOP recommends triage is carried out via telephone or triage platforms. SA requested that the document is checked to clarify that telephone triage is not being confused with telephone consolation. JS
c) GP Winter Workload Pressures (SOP) The document, circulated with the agenda, was noted. A general discussion took place on the definition of significant workload pressures. JS advised that the definition needs to be clear across Manx Care as this will be significant to the delivery of primary care services. Input would therefore be required from urgent care, respiratory and general medicine colleagues. It was noted that colleagues were disappointed that no hospital clinical colleagues were present today. JS explained that paragraph 4.4 of the SOP refers to liaising with hospital colleagues with the suggestion that protocols be established on how hospital colleagues are liaised with should a clinician feel that a patient should be more appropriately seen in a hospital setting. It was agreed that a discussion would be held away from this meeting to agree a way forward. SA/JS
24/21 Cranial Arteritis Pathway stated, via JS, that she raised the topic as RP and another Consultant both declined to see patients who had been referred with a normal PV. explained that she was advised by both Consultants that symptoms could not be related to Giant Cell Arteritis (GCA) with a normal PV, but this was not supported by the neurologists and the literature. KW requested advice on dealing with the less typical cases. RP advised that the pathway was prepared three/four years ago. Guidelines were last updated by the British Society for Rheumatology (BSR) in 2020. The pathway is still valid and has no changes. RP explained that during the previous three months, two patients had been seen in the Emergency Department (ED) and then on the Acute Medical Ward (AMU) via the pathway. Biopsies were taken while in AMU, the report was received the next day with RP seeing the patients within two weeks. In practice, the pathway is working well, though this will only continue to work if colleagues in primary and secondary care pick up signs and symptoms properly. JC asked what the process was when a patient received a negative biopsy result. RP explained that an alternative diagnosis should be considered. If the diagnosis is strongly suspected and there are concerns/evidence of visual loss or concern thereof then the patient should be referred to eye casualty or ophthalmology immediately. RP advised that this pathway is predominately for GPs and other clinicians who are strongly suspecting a diagnosis of GCA and especially if there are serious concerns about vision being effected. For those patients with symptoms and visual loss this is the pathway designed to prevent a delay in diagnosis; ultrasound of Temporal and Axillary Arteries (USG) completed within 24/48 hours and Temporal Artery Biopsy (TAB) within 7/14 days. It was noted that GPs are within their rights to refer to other areas; essential that biopsies and ultrasounds are completed in timeframes when positive diagnosis suspected. KW stated, via JS, that Consultants have refused to see patients when it may not be GCA. RP advised that he can only see patients and grade the urgency of the appointment on the clinical evidence he has. He cannot force another clinician to complete a biopsy and will see patients in clinics but not necessarily the next day. There is access to rapid access clinics post TAB or USG which confirms diagnosis or if the ophthalmic team feel that there is evidence of GCA.
to see patients who had been referred with a normal PV. explained that she was
advised by both Consultants that symptoms could not be related to
(GCA) with a normal PV, but this was not supported by the neurologists and the
literature. KW requested advice on dealing with the less typical cases.
It was noted that GPs are within their rights to refer to other areas; essential that
biopsies and ultrasounds are completed in timeframes when positive diagnosis
suspected.
KW stated, via JS, that Consultants have refused to see patients when it may not be
GCA. RP advised that he can only see patients and grade the urgency of the
appointment on the clinical evidence he has. He cannot force another clinician to
complete a biopsy and will see patients in clinics but not necessarily the next day.
There
asked RP how many symptoms (noted in the clinical suspicion of GCA box on the pathway document) should the patient be displaying before commencing the pathway process. RP stated at least two. explained that there is no quick access to an inflammatory marker, blood test results will not be carried out unless the patient is a hospital inpatient. is aware that blood test results are taking up to six days at present. RP advised that if an urgent sample is sent with a suspected diagnosis of GCA it will be treated as urgent and done as soon as possible within a couple of hours; that is the agreement in place, they will be prioritised as a medical emergency. RP explained that the patient could be sent to ED, AMU and ophthalmology on call if necessary; there is an agreement in place and ophthalmology will see patients immediately. RP stated that ED have the flowchart, they can be contacted and patients will be seen for urgent blood tests. stated that this is not recorded on the pathway. SA suggested that GPs follow the pathway if comfortable but can always revert to referring to ED if appropriate. RP agreed. RP left the meeting at 5.31 pm. Additional information noted after JC left the meeting: asked if all Clinical Directors and Consultants had agreed to the pathway and the suggestion that patients can be sent to ED for urgent blood tests. SA advised that it is the responsibility of RP to ensure the hospital teams are aware of processes. Post meeting note: The updated protocol has been forwarded to the Quality Assurance and Adult Safeguarding Lead who will upload it on to the hospital system and update it.
25/21 Any Other Business a) Care/Nursing/Residential Homes and Isolation Advice JC asked for clarification on treating patients with Covid symptoms who go on to have a negative PCR test with the GP then being asked for advice on self-isolation. JC explained that it not the role of a GP to provide advice on self-isolation matters; this is the responsibility of the 111 team. JC explained that should a patient develop a cough, high temperature and/or shortness of breath they will be treated by the GP though carers should also contact the 111 team to arrange a PCR test. reiterated that GPs can provide a clinical assessment on a patient though it is not within their remit to make any legal decision on self-isolation following a negative result. JC advised that following a negative result if the GP still suspected Covid they would advise the 111 team to be contacted again. SA stated that he would raise the issue of providing self-isolation advice to homes in the Bronze and Silver Command meetings. JS asked if a further issue could be raised also in the above meetings with the Microbiology team in order to obtain advice as to when the patient should be tested again should a negative Covid result be received, though the illness is still suggestive of Covid by the GP. SA agreed to raise the issue. JC stated that, in his opinion, the Infection Prevention and Control policy is very hospital based. JC left the meeting at 5.42 pm. There being no further business the meeting closed at 5.45 pm. SA SA
asked RP how many symptoms (noted in the clinical suspicion of GCA box on the
pathway document) should the patient be displaying before commencing the pathway
process. RP stated at least two.
Item Number Subject Action
27/21 Apologies Apologies received are noted above.
28/21 Minutes of the meeting held on 20 September 2021 One amendment to the minutes from 20 September 2021 was requested by JS. Minute 23/21 (b) last sentence: SA requested that the document is checked to clarify that telephone triage is not being confused with telephone consolation. This should read: SA requested that the document is checked to clarify that telephone triage is not being confused with telephone consultation. The minutes will be amended and reissued. The remainder of the minutes of the meeting held on 20 September 2021 were agreed as a true account.
29/21 Matters Arising Not discussed.
30/21 Primary Care Winter Workload Pressures Standard Operating Procedure (SOP) a) Workable definition to be agreed for the trigger point for implementing the SOP It was agreed to defer this item to the next meeting. b) Primary Care and Urgent Care liaison when the SOP is implemented It was agreed to defer this item to the next meeting.
31/21 NHS UKHSA Recommendations to reduce physical distancing and changing pre-procedure testing elective and planned care It was agreed that would draft a response for SA supporting proposed flexibility by the UKHSA to the current NICE pre-elective patient testing protocols for specific patient groups i.e. an on-the-day LFD test.
32/21 COVID - 19 Pathways a) Surveillance screening for COVID-19 in Hospitals The group agreed to the pathway. b) Covid-19 swabbing pathway for discharge planning The group agreed to the pathway.
33/21 Any Other Business a) Positive Blood Culture Incident Review Process The group agreed to the pathway.
34/21 Next meeting: Wednesday 24 November 2021 at 4.30 pm on MS Teams.
Version Date Purpose of Issue/Description of Change Review Date
1 25 10 21 This is the first iteration of the Manx Care Access Policy following the inception of Manx Care on 01 04 2021 01 10 23
Status Open
Publication Scheme Our Policies and Procedures
FOI classification Refer to author before release
Function/Activity N/A
Project Name N/A
Key words Waiting lists, waiting times, admissions, inpatient, outpatient, diagnostic, referral to treatment, 18 weeks, DNA, cancellation, access standard
Author
Approval and/or Ratification body Manx Care Executive Management Committee on 29/10/21
Item Number Subject Action
General SA advised that the structure and membership/attendance is to be discussed as attendance at CAG meetings by Clinical Directors (CDs) is low. It was noted that due to busy clinical commitments it was understandable CDs were not able to attend all meetings though the lack of clinical ‘buy in’ was a concern. JS stated that clinical ‘buy in’ is important and suggested consideration is given to an honest discussion on low attendance with the days and timing of the meetings to be agreed. JC joined the meeting SA provided an update on the above discussion to JC; JC agreed with the comments made. SA decided to continue with the meeting despite the absence of CDs.
07/21 Apologies Apologies received are noted above.
08/21 CATCH Sites Verbal presentation by Juan Corkill JC reported the following.  Covid Assessment and Treatment Community Hub (CATCH) sites were established in March 2020 for Covid and high risk patients to be seen outside of a GP surgery.  Covid Assessment Treatment Unit (CATU) was established in the Emergency Department of Nobles at the same time.  GP contractual obligations were ‘turned off’. In hindsight this may not have needed to happen.  July 2020, no Covid restrictions apart from borders remaining closed, primary care services resumed normal service.  An outbreak on 31 December 2020 did not result in CATU being resurrected. At that time no GP had had any contact with a Covid patient.  GP infrastructure at that time was affected due to various staffing levels and the possibility that surgeries would have to close. Ballasalla surgery closed for two days in order that a deep clean could take place.  Catch sites initiated again during a short lockdown.
 Discussions on going with Mental Health Services in relation to a shared care
arrangement for Child and Adolescent Mental Health Service (CAMHS). GPs will be paid
£150 pa for each shared care case.
SA asked;
1. Are the number of patient’s attending hot sites increasing?
 Problems are not GP or Nobles; Manx Care to work as a team with clients/patients at the heart.  Establishment of a joint prescribing committee to be discussed at the next CAG.  Discuss at the next CAG the suggestion that GPs and Specialties are rotated. Begin to work together to get to the strategy stage.  Any operational delivery of care will be underpinned by finance.
09/21 Covid-19 Pathways Not discussed due to time constraints.
10/21 Any Other Business a) Results Acknowledgement Not discussed due to time constraints. There being no further business the meeting closed at 5.34 pm.
11/21 Next meeting: Wednesday 18 August 2021 at 4.30 pm on MS Teams.
Item Number Subject Action
27/21 Apologies Apologies received are noted above.
28/21 Minutes of the meeting held on 20 September 2021 One amendment to the minutes from 20 September 2021 was requested by JS. Minute 23/21 (b) last sentence: SA requested that the document is checked to clarify that telephone triage is not being confused with telephone consolation. This should read: SA requested that the document is checked to clarify that telephone triage is not being confused with telephone consultation. The minutes will be amended and reissued. The remainder of the minutes of the meeting held on 20 September 2021 were agreed as a true account.
29/21 Matters Arising Not discussed.
30/21 Primary Care Winter Workload Pressures Standard Operating Procedure (SOP) a) Workable definition to be agreed for the trigger point for implementing the SOP It was agreed to defer this item to the next meeting. b) Primary Care and Urgent Care liaison when the SOP is implemented It was agreed to defer this item to the next meeting.
31/21 NHS UKHSA Recommendations to reduce physical distancing and changing pre-procedure testing elective and planned care It was agreed that would draft a response for SA supporting proposed flexibility by the UKHSA to the current NICE pre-elective patient testing protocols for specific patient groups i.e. an on-the-day LFD test.
32/21 COVID - 19 Pathways a) Surveillance screening for COVID-19 in Hospitals The group agreed to the pathway. b) Covid-19 swabbing pathway for discharge planning The group agreed to the pathway.
33/21 Any Other Business a) Positive Blood Culture Incident Review Process The group agreed to the pathway.
34/21 Next meeting: Wednesday 24 November 2021 at 4.30 pm on MS Teams.
Item Number Subject Action
21/21 Apologies Apologies received are noted above. A general discussion took place on the attendance at these meetings. JS stated that he felt this was the only forum available for senior clinical leaders and it would not function as an effective group if Manx Care was not fully represented. JC agreed. KW joined the meeting at 4.39 pm and explained that she had no camera or microphone available. SA explained that it was important to meet and have the issues discussed. SA suggested that he would look for consensus for future meeting dates and times, perhaps via Doodle Poll. SA
22/21 Guidance to Care and Residential Homes: Community Geriatricians SA stated that the Care Quality Commission (CQC) England forwarded guidance advising that visitors to care/residential homes should be double vaccinated prior to entering the premises. A general discussion followed. The group agreed that it is strongly advised that visitors to care/residential homes should be double vaccinated prior to entry as per CQC advice.
23/21 Primary Care Winter Pressures (Standard Operating Procedures (SOPs)) a) Primary Care Guidance The document, circulated with the agenda, was noted. b) GP Living with Covid (SOP) The document, circulated with the agenda, was noted; it was recognised that the SOP should be read alongside the Integrated Primary and Community Care ‘Living with COVID’ Guidance which sets out relevant procedures to follow generically. JS explained that the SOP relates to the triage of patients to determine on how best they can be managed clinically. The SOP recommends triage is carried out via telephone or triage platforms. SA requested that the document is checked to clarify that telephone triage is not being confused with telephone consolation. JS
c) GP Winter Workload Pressures (SOP) The document, circulated with the agenda, was noted. A general discussion took place on the definition of significant workload pressures. JS advised that the definition needs to be clear across Manx Care as this will be significant to the delivery of primary care services. Input would therefore be required from urgent care, respiratory and general medicine colleagues. It was noted that colleagues were disappointed that no hospital clinical colleagues were present today. JS explained that paragraph 4.4 of the SOP refers to liaising with hospital colleagues with the suggestion that protocols be established on how hospital colleagues are liaised with should a clinician feel that a patient should be more appropriately seen in a hospital setting. It was agreed that a discussion would be held away from this meeting to agree a way forward. SA/JS
24/21 Cranial Arteritis Pathway stated, via JS, that she raised the topic as RP and another Consultant both declined to see patients who had been referred with a normal PV. explained that she was advised by both Consultants that symptoms could not be related to GCA with a normal PV, but this was not supported by the neurologists and the literature. KW requested advice on dealing with the less typical cases. RP advised that the pathway was prepared three/four years ago. Guidelines were last updated in 2020. The pathway is still valid and has no changes. RP explained that during the previous three months, two patients had been seen in the Emergency Department (ED) and then on the Acute Medical Ward (AMU) via the pathway. Biopsies were taken while in AMU, the report was received the next day with RP seeing the patients within two weeks. In practice, the pathway is working well, though this will only continue to work if colleagues in primary and secondary care pick up signs and symptoms properly. JC asked what the process was when a patient received a negative biopsy result. RP explained that an alternative diagnosis should be considered. If vision is affected then the patient should be referred to eye casualty or ophthalmology immediately. RP advised that this pathway is predominately for GPs who feel that there is very high risk associated with visual loss. For those patients with symptoms and visual loss this is the pathway designed to prevent a delay in diagnosis; ultrasounds completed within 24/48 hours and DAB within 7/14 days. It was noted that GPs are within their rights to refer to other areas; essential that biopsies and ultrasounds are completed in timeframes when positive diagnosis suspected. KW stated, via JS, that Consultants have refused to see patients when it may not be GCA. RP advised that he can only see patients and grade the urgency of the appointment on the clinical evidence he has. He cannot force another clinician to complete a biopsy and will see patients in clinics but not necessarily the next day. asked RP how many symptoms (noted in the clinical suspicion of GCA box on the pathway document) should the patient be displaying before commencing the pathway process. RP stated at least two.
to see patients who had been referred with a normal PV. explained that she was
advised by both Consultants that symptoms could not be related to GCA with a normal
PV, but this was not supported by the neurologists and the literature. KW requested
advice on dealing with the less typical cases.
RP advised that this pathway is predominately for GPs who feel that there is very high
risk associated with visual loss. For those patients with symptoms and visual loss this i
the pathway designed to prevent a delay in diagnosis; ultrasounds completed within
24/48 hours and DAB within 7/14 days.
It was noted that GPs are within their rights to refer to other areas; essential that
biopsies and ultrasounds are completed in timeframes when positive diagnosis
suspected.
KW stated, via JS, that Consultants have refused to see patients when it may not be
GCA. RP advised that he can only see patients and grade the urgency of the
appointment on the clinical evidence he has. He cannot force another clinician to
complete a biopsy and will see patients in clinics but not necessarily the next day.
asked RP how many symptoms (noted in the clinical suspicion of GCA box on the
pathway document) should the patient be displaying before commencing the pathway
process. RP stated at least two.
explained that there is no quick access to an inflammatory marker, blood test results will not be carried out unless the patient is a hospital inpatient. WC is aware that blood test results are taking up to six days at present. RP advised that if an urgent sample is sent with a suspected diagnosis of GCA it will be completed within the hour; that is the agreement in place, they will be prioritised as a medical emergency. RP explained that the patient could be sent to ED, AMU and ophthalmology on call if necessary; there is an agreement in place and ophthalmology will see patients immediately. RP stated that ED have the flowchart, they can be contacted and patients will be seen for urgent blood tests. WC stated that this is not recorded on the pathway. SA suggested that GPs follow the pathway if comfortable but can always revert to referring to ED if appropriate. RP agreed. RP left the meeting at 5.31 pm. Additional information noted after JC left the meeting: asked if all Clinical Directors and Consultants had agreed to the pathway and the suggestion that patients can be sent to ED for urgent blood tests. SA advised that it is the responsibility of RP to ensure the hospital teams are aware of processes. SA will speak with RP for clarification. SA
25/21 Any Other Business a) Care/Nursing/Residential Homes and Isolation Advice JC asked for clarification on treating patients with Covid symptoms who go on to have a negative PCR test with the GP then being asked for advice on self-isolation. JC explained that it not the role of a GP to provide advice on self-isolation matters; this is the responsibility of the 111 team. JC explained that should a patient develop a cough, high temperature and/or shortness of breath they will be treated by the GP though carers should also contact the 111 team to arrange a PCR test. reiterated that GPs can provide a clinical assessment on a patient though it is not within their remit to make any legal decision on self-isolation following a negative result. JC advised that following a negative result if the GP still suspected Covid they would advise the 111 team to be contacted again. SA stated that he would raise the issue of providing self-isolation advice to homes in the Bronze and Silver Command meetings. JS asked if a further issue could be raised also in the above meetings with the Microbiology team in order to obtain advice as to when the patient should be tested again should a negative Covid result be received, though the illness is still suggestive of Covid by the GP. SA agreed to raise the issue. JC stated that, in his opinion, the Infection Prevention and Control policy is very hospital based. JC left the meeting at 5.42 pm. There being no further business the meeting closed at 5.45 pm. SA SA
26/21 Next meeting: Wednesday 27 October 2021 at 4.30 pm on MS Teams. Apologies received from Post meeting note; the next meeting is scheduled for Thursday 28 October 2021 at 4.30 pm on MS Teams.
Author(s) Tammy Hewitt, Head of Strategic Partnerships
Version Number 1.3 FINAL DRAFT
Document effective from July 2022
Next review due June 2023
Intended audience Manx Care and Commissioned Providers
Superseded documents Not applicable
Stakeholders consulted prior to ratification Oliver Radford, Director of Operations Sree Andole, Medical Director Maria Bell, Pharmaceutical Advisor Clinical Advisory Group (CAG)
Ratified by Executive Management Committee Date:
Previous reviews Not Applicable
Changes made during latest review Not Applicable
Pathway 1 Urgent Need Pathway 2 Clinical Priority Pathway 3 Individual Characteristics
The patient is suffering from a disease or condition from which the likelihood of death or serious irreversible harm is probable unless the course of the disease or condition is interrupted by the immediate introduction of a NICE TA treatment OR The patient’s day to day life is severely impacted and impaired resulting in repeated presentations for emergency treatment and/or prolonged admissions into hospital as a result of their disease OR The patient has previously received a NICE TA drug whilst living outside the Isle of Man and suspending treatment would result in a significant deterioration in their condition OR The patient’s mental health is being severely affected. The condition has an extreme impact on quality of life and the patient is felt to have particularly severe disease. There is strong evidence that the individual patient is likely to gain significantly greater benefit from access to the NICE TA treatment than might be expected for other patients in the cohort with the disease or condition, such as studies demonstrating greater benefit in those with specific disease markers or genetic characteristics.
Author(s) Tammy Hewitt, Head of Strategic Partnerships
Version Number 1.2 FINAL DRAFT
Document effective from July 2022
Next review due June 2023
Intended audience Manx Care
Superseded documents Not Applicable
Stakeholders consulted prior to ratification Oliver Radford, Director of Operations Sree Andole, Medical Director Maria Bell, Pharmaceutical Advisor Clinical Advisory Committee (CAG)
Ratified by Executive Management Committee Date:
Previous reviews Not Applicable
Changes made during latest review Not Applicable
Item Subject Action by:
No.
56/23 Apologies for Absence • • Dr Sadha Punniyakodi • • Dr B Krishnan • •
57/23 Review notes/Matters arising from previous meeting Meeting notes approved  CAG Notes July23.docx
58/23 Review of Action Log Action log reviewed and updated  CAG Action Log 02Oct23.pdf
59/23 IT and operational performance data analytics Due to absence item rolled forward Verbal
60/23 Role, remit and responsibilities of the Clinical Service Lead – for update & discussion Due to absence item rolled forward Verbal
61/23 Joint care arrangements – for update & discussion Due to absence item rolled forward Verbal
62/23 Medical Gas Policy Updated policy presented by for information. SOP information removed to provide policy based document, bringing together medical gas cylinders and pipes. Ratified by the non-clinical quality group and is due to go to EMC for final sign off. Medical Gas group now operational should there be any questions.  Medical Gas policy 2023 ManxCare ver d Operational Policy - MGPS for Noble's Ho
63/23 Treatment Escalation Plan Standard Operating Policy Presented by & Dr Duncan Gerry as an update to the group. In summary the Treatment Escalation Plan is about making decisions for people both in and out of hospital. It's a step beyond a DNA CPR decision and it has been a quality improvement project for the best part of a year. Under the governance format of the Resuscitation Committee multiple people are involved e.g. palliative care, a specialist, nurses, ambulance crew, GP. In the next 6 months it is anticipated the DNA CPR form can be replaced with a treatment escalation form. They are aware that any policy change involving death and dying can be misinterpreted so there will be an education and information alongside. Next step will be to replace all DNA CPR forms with the new combined TEP form. Plan is to roll it out gradually throughout the wards starting with ED. IP advised that the end of life and palliative care pathway falls within CQC implementation action plan so he would like to be involved. Also questioned if there had been involvement of Primary Care in the process and it was confirmed GPs are on board. VF aware of problems with these policies in the UK and asked if this had been taken in to account and measures to prevent issues put in place.
DG/ have tried to cover this with education programs, getting people on board and visibility of the form prior to it being completed. Trying to do this thoroughly and properly and rolling out area by area. JN supported what has been discussed so far and also advised that she has undertaken teaching of F1 & F2 medical students regarding palliative care and they have been offered shadowing opportunities at Hospice.  Engage with IP to ensure all areas covered  Additional wording to be included to avoid misunderstanding with assisted dying/euthanasia.  /DG to bring back to CAG in 4 months DG/ DG/ DG/
64/23 AOB No further items
65/23 Date of next meeting: Wednesday, 18 October 2023 @ 1600 hrs
Item Subject ACTION By:
No.
97/22 Apologies for Absence • Balakrishnan Venkitasamy • Lakshman Paudyal • • Martin Rankin • • Ishaku Pam
98/22 Matters arising from previous meeting Universal Mask wearing was stepped down as a result of the last meeting on the basis that it is regularly monitored. advised there are indications of Covid cases increasing in UK. From data available here the case numbers are very low. Agreed to continue monitoring and bring back to CAG if anything needs to be escalated
99/22 Guidance on how to manage patients who cannot have a mRNA vaccine as a booster – paper submitted by SA brought the paper to the attention of the group. For people who cannot have mRNA, Novavax COVID-19 can as per JCVI guidance be used for primary vaccination. CAG Submission - Covid-19 vaccination
100/22 Interpretation of JCVI Guidance re children 5/11yrs - paper submitted by strongly against vaccination for 5/11 yrs & 11/18 yrs. As of 1.8.22, combined totals for the Oxford AstraZeneca and Pfizer / BioNTech vaccines in the Yellow Card scheme were 418,472 reports concerning 1,368,814 adverse reactions, with 2,112 fatalities. Contrary to international data, which suggest higher (approx 2x) ADR rates with the Pfizer and Moderna vaccines, the Yellow Card numbers are about 1.5:1 Ox/AZ vs Pfizer/BNT. SA - I understand that we have some reservations in vaccinating this group but we will continue to adhere to JCVI guidance here in IoM To go back to vaccination group and verify information provided CAG submission - Covid-19 vaccination SA
101/22 Draft Policy – Testing for COVID in ICU Policy submitted and presented by Following a visit by senior ITU staff to Merseyside and Cheshire Critical Care network group it was established that the other trusts within the network are continuing to do PCR tests for patients admitted to ICU. This has resulted in the attached policy which requires CAG to recommend in order to move forward. provided case examples as justification for implementing the policy. advised meeting had taken place as higher rates of flu and RSV expected this season. A paper/proposal will be put forward for discussion at the next CAG. No objections policy agreed Manx Care COVID screening for patien
102/22 Alteplase SA introduction: This is a drug given for 3 acute emergencies in medicine: stroke/ heart attack /pulmonary embolism. There is now a worldwide shortage due to production issues in Germany. The latest information is that it may not be any better before March 2023. Shortage of antithromlolytic age
There has been a lot of planning in the last few months on how to manage and a Committee has been formed headed by (includes cardiologist, stroke physician & respiratory) provided update: • National shortage of antithrombolytic agents (ie Alteplase / Tennecteplase) • Emergency meeting held last week (notes attached). • Pharmacy have provided a list of total stock available across all depts/wards/ambulance. Worst estimation is they will run out by end of year • Primarily we have to protect stroke (Alteplase) as time critical (within 4.5 hrs) • MI’s (Tenecteplase, Alteplase, Streptokinase & Urokinase) have a window of 12 hours with initial use of Clopidogrel • PE can have initial treatment of heparin infusion to stabilise • In order to monitor accurately we will collect all Alteplase and store in the stroke department, including any part bottles from Ambulance. Anything left in a bottle can be safely used in stroke unit. • Tenecteplase not licensed in UK but there are ongoing studies and has confirmed ok to go ahead. • Suggest we upgrade contract with Liverpool to include transfer for mechanical thrombectomy. VF confirmed Radiology support for this, hopefully Radiographers will also be on board. SA we need system wide response - will keep informed SA – bring back to CAG SA/
102/22 AOB Medicinal Cannabis – update SA - We want a policy for what we can do for patients that come into healthcare settings. Pharmacy dept is now leading on response and sending out questionnaire to all medics for their input to operationalise the pathway. Update from on insourcing with Synaptik • Started in April with Synaptik on IOM (we were second client) • Phase 1 home surgeons operating with Synaptik ward staff, theatre staff etc. • Length of stay reduced from 4.5 to 1.5 days. (Extended hours physio, higher staffing ratio) • Feedback from patients is successful. • Subsequent phases included Synaptik surgeons. • Start of project waiting list was 600 – currently done 270 (so all waiting lists for joint replacements now under 1yr.
• Good learning experience for us and Synaptik. • 40% of waiting list done in 10 weeks and trying to learn from it. • Multidisciplinary approach needed • Ophthalmology is similar story doing high volumes of cataracts. • Should be further project of general surgery starting December. • Model is extremely successful - beds ring fenced in PPU. • Important to engage with the process and be open minded.
103/22 Date of Next Meeting: Wednesday, 2nd November 2022 @ 0800 hrs
Item Subject Action by:
No.
65/23 Apologies for Absence • Dr Lakshman Paudyal • Dr V Balakrishnan • Dr David Hedley • Dr Ishaku Pam •
66/23 Review notes/Matters arising from previous meeting Meeting notes approved  Notes CAG 02Oct23.docx
67/23 Review of Action Log Action log reviewed and updated.  18Oct23.CAG Action Log 2023.pdf
68/23 IT and operational performance data analytics Presented by suggested this be a regular item on the CAG agenda in order to review outcome measures for each service and to have up to date operational performance measures for sharing. Sree had initially circulated a slide to be used as template but this was not taken up.
 It was agreed to roll forward to next month when Sree will be back when a definitive set of measures can be agreed and then used to submit data.
69/23 Role, remit and responsibilities of the Clinical Service Lead – for update & discussion Presented by looking for a definition in writing of a Clinical Lead with remit & responsibilities. The reason for raising this topic is that with leadership comes accountability, which needs to be addressed. The Clinical Service Lead role currently comes with 1 SPA allocation in the Consultant job plan. He asks for this role to be defined in writing and attach correct amount of time. In the UK the standard term for this role is 3 years. MH advised this is an ongoing discussion In Clinical Director meetings. Currently there is no Manx Care job description. Currently looking at leadership going forward which will become more obvious and transparent in coming year. agreed with what has said and he has noticed these roles are very different on IOM as Clinical Leads are expected to have a wider range and cover far more. MH confirmed the plan is to work on this in order to be very clear with leadership models. It is work in progress and we should know in the New Year what the roles will be in leadership. raised the point that in UK business managers provide support, whereas this is not the case here. Without managerial input the role is very difficult.  MH advised this is something she will hand over to Sree upon his return as it is ongoing work and will require engagement with medical workforce to establish what the role is. MH
70/23 Joint care arrangements across primary & secondary care Presented by brought this topic to CAG following a trigger in his speciality that highlighted the lack of formal arrangements in place that is probably similar across other specialities. JS advised that if this is specifically regarding Shared Care, then there is a Shared Care programme, with business cases submitted for each Shared Care pathway. If this is an undeveloped pathway it will need to be put in the program via the Care Group leadership.
MH informed that Shared Care arrangement with CAMHS regarding ADHD & melatonin medications is a pilot with GPs whereby GP’s are being paid. MH will feed back on the success of the process in a few months’ time. clarified that the reason he described it as ‘Joint Care’ is due to the inpatient situation where medics and surgeons are not working together. An agreed set of ground rules for inpatient setting would be helpful. agrees, this is ongoing and MH currently involved.  MH confirmed here is a distinct lack of collaboration and there needs to be a collaborative exercise to review SOPs to ensure fit for purpose and she will take this issue forward in her handover to Sree (SA). MH
71/23 Organ Donation Policy for information & comment presented the policy that she has co-written. The policy has been ratified at the Organ Donation committee in September and was presented at the Quality Care Group meeting where they asked for the policy to be presented at CAG. Essentially the policy lays out processes on how we function and deliver organ donation in this hospital and what everybody’s jobs are, with being Clinical Lead in Organ donation. Main audience to address is ED, ICU, theatres, pathology and mortuary. However everyone should be aware and supportive. The policy has 8 appendices, eg how to contact and bring over the retrieval team, how to approach families No issues raised by the group. Appendix 1 Form Appendix 2 Appendix 3 for the diagnosis of Diagno sing D eath SDona t ion afte r Diag Appendix 4 Appendix 5 Appendix 6 care-of-potential-lunWITHDRAWAL OF TRDONATION AF TER C Appendix 7 Appendix 8 CARE DONATION AFTER DAFTER DONA TION.d  OTD-01 - IOMOrgan Donation
72/23 Pathology MDS Policy for information & comment  Item to be carried forward to the next meeting.
73/23 Do Not Attempt Cardiopulmonary Resuscitation Policy – for information & comment Presented by Having taken the DNA CPR to OCG Dr Pam suggested bring it to CAG. explained it is not a new paper, only a review of an existing policy. There are no changes as there is a group working to implement a Treatment Escalation Plan (TEC) in the near future. This group is currently working on a policy that will replace in part this DNA. (Presented at CAG 02Oct23 by Dr Duncan Gerry & ) MR currently using one from TEP group as part of the limited rollout. advised it was always intended to be a limited roll out to work through issues. confirmed that the intention is for the DNA form to cease once the TEP form is finalised. The DNA CPR will be incorporated into TEP. The DNA CPR needed a review to keep it legal and current until TEP is rolled out. raised a concern as to whether the wording is strong enough on 2.8 lack capacity. Although advised it is worded more strongly elsewhere in the policy AD suggests strengthening the wording in that particular paragraph wording, ie MUST Questions were asked about the status and rollout of the TEP. advised that has been produced as a Quality Improvement Project and is only used in a limited in way. E.g. Dr Gerry team, Ward 6, Ramsey & Siverdale (MR)  will revisit the wording on sec 2.8 and amend accordingly 2023DNACPRV2.pdf
74/23 AOB Nothing raised
75/23 Date of next meeting: Wednesday, 15 November 2023 @ 1600 hrs
Item Subject Action by:
No.
76/23 Apologies for Absence • • Dr B Krishnan •
77/23 Review notes/Matters arising from previous meeting Meeting notes approved  Notes CAG 18Oct23.docx
78/23 Review of Action Log Action log reviewed and updated  CAG Action Log 2023.xlsx
79/23 IT and operational performance data analytics to discuss with as AMD for Patient Safety & Governance
80/23 Urgent/non urgent pathways for discussion Non raised
81/23 Updated TOR for review TOR agreed (reporting line to Bronze & Silver Commands removed) Terms of Reference Clinical Advisory Gro
82/23 Referrals Not discussed
83/23 Medicines Policy for information/review MH apologised as she had to make a decision on this policy, otherwise we would be in a vulnerable position of having no signed off policy in place. (One of the CQC standards that we kept failing). Reference to EBNF was removed as the GP’s do not have access to this. It was agreed to ratify the policy as somewhere to start working - there will be 6 months to review and have a meaningful consultation exercise by all Doctors. The Medicines Policy is now on the intranet and MH encourages all Doctors to review.  Policy to be brought back to the meeting for comments  23-11 Medicines Policy - V5 All chang MH/
84/23 AOB Meeting day/time It was proposed to alternate the meeting day each month – Tuesday, then Wednesday.  This was agreed and a new schedule of meetings alternating Tuesday/Wednesday for 2024 will be sent out. MECFS & Long Covid Service had received contact by one of the users and requested input on how to handle the matter. After discussion it was agreed that the correct route would be to refer through MCALS so it is dealt with in a systematic way and it is fully recorded.
85/23 Date of next meeting: Wednesday, 20 December 2023 @ 1600 hrs

Full Response Text

AGENDA

Clinical Advisory Group (CAG)

Thursday 12 August 2021 4.30 - 5.30 pm

MS Teams

Item No.

Subject
Discussion Lead
Document(s) Attached

07/21 Apologies

SA

08/21

CATCH Sites
Verbal presentation by Juan Corkill JC

09/21 Covid-19 Pathways SA

10/21 Any Other Business

a) Results Acknowledgement

SA

11/21 Next meeting: Wednesday 18 August 2021 at
4.30 pm on MS Teams.


AGENDA

Clinical Advisory Group (CAG)

Wednesday 23 June 2021 4.30 - 5.30 pm

MS Teams

Item No.

Subject
Discussion Lead
Document(s) Attached

01/21 Apologies

SA

02/21 Improving the Quality of Electronic Discharge Summaries SA  03/21 Covid 19 Vaccines/Allergies

SK

04/21 Long Covid; the NHS Plan for 2021/22

SA/JS 
05/21 Any Other Business

All

06/21 Date of Next Meeting if appropriate

SA


AGENDA

Joint Clinical Advisory Group (Joint CAG)

Wednesday 30th March 2022
4.30 - 5.30 pm

MS Teams

Item No.

Subject
Discussion Lead
Document(s) Attached

15/22 Apologies

SA

16/22 Matters Arising From Last Meeting

SA

17/22 Global Burden of Disease Study on Dementia Prevalence - implications for population health

Please read link to the paper below.

Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019 - The Lancet Public Health

SA  18/22

Capacity Bill - Advance Consent

Department meeting 6 December - Capacit SA  19/22

Updates on Transformation SA

20/22 ANP Referrals SA

21/22 Any Other Business

SA

22/22 Date of next meeting:
Wednesday 27th April 2022 at 4.30 pm


Classification: Official

Publications approval reference: C1312

Long COVID: the NHS plan for 2021/22

Version 1, June 2021

Classification: Official

2 | Long COVID: the NHS plan for 2021/22

Content Summary .................................................................................................................. 3 Summary of actions on Long COVID 21/22 .............................................................. 6 1. What we know about Long COVID ....................................................................... 8 2. Expanding Long COVID treatment and rehabilitation services ........................... 12 3. Enhancing general practice services to support patients with Long COVID ....... 20 4. Long COVID in children and young people ......................................................... 23 5. Rehabilitation to manage the most common Long COVID symptoms ................ 25 6. Extending the use of the Long COVID self-management digital tool .................. 27 7. Improving data quality and transparency ............................................................ 29 8. Focus on equity of access, outcomes and experience ....................................... 31 9. Supporting NHS staff with Long COVID ............................................................. 34 Useful information ................................................................................................... 36

Classification: Official

3 | Long COVID: the NHS plan for 2021/22

Summary • Highly debilitating for many sufferers, Long COVID is an increasingly widespread, multi-system condition. Regardless of the severity of their initial illness, it appears that anyone of any age – including children - can experience Long COVID.
• The term ‘Long COVID’ includes both ongoing symptomatic COVID-19 (5-12 weeks after onset) and Post-COVID-19 Syndrome (12 weeks or more). It is associated with a wide range of different symptoms impacting physical, psychological and cognitive health. It can also have an effect on quality of life and ability to work or attend education.
• As an initial response to the challenge of Long COVID, last October the NHS set out a 5-point plan: – advice for clinicians and information for patients: NICE published the case definition in November and clinical guidance on managing the long- term effects of COVID-19 in December 2020 – providing Post-COVID Assessment Clinics. 89 clinics have now been established in England to offer specialist physical, cognitive or psychological assessment. While the second COVID-19 wave impacted them, early data showed increases to over 1500 referrals a week – over 1.5 million visits have been made to the patient information section of the Your COVID Recovery website and over 100 rehabilitation services have been trained to support patients to use the specialist online rehabilitation support element – on research, the NHS worked with the National Institute of Health Research to support studies to advance understanding of Long COVID with £50 million having now been committed to research – finally, we have been much aided by the work of the NHS Long COVID Taskforce, which includes people with lived experience of Long COVID, NHS staff and researchers.

Classification: Official

4 | Long COVID: the NHS plan for 2021/22

These foundations provide the basis for a further 10 key next steps, underpinned by an additional £100 million, to which the NHS now commits in 2021/22:
1. £70 million to expand Long COVID services to add to the £24 million already spent on Post-COVID Assessment Clinics. By mid-July 2021, all local NHS systems will have submitted to regions, fully staffed Long COVID service plans covering the whole pathway from primary and community to specialist care. These should cover diagnostics, treatment, rehabilitation, children’s services and mental health services. To support this NHS England and NHS Improvement have developed a more detailed Long COVID clinical pathway, with help from an expert clinician group and people with lived experience, which was published as part of updated national commissioning guidance for Post-COVID Assessment Clinics in April 2021.1
2. £30 million for the rollout of an enhanced service for general practice to support patients to be managed in primary care, where appropriate, and enable more consistent referrals to clinics for specialist assessment and treatment. Funding for the enhanced service will be made available to general practice to support professional education; support training and pathway development that will enable clinical management in primary care, where appropriate; and enable more consistent referrals to clinics for specialist assessment in line with the recently updated Commissioning Guidance; and planning to ensure equity of access.
3. Care coordination. Care coordinators will support the running of Post-COVID Assessment Clinics. Long COVID can be a complex, multi-system disease. They will ensure care is joined up and prioritised based on clinical need. We will publish information about waiting times to ensure transparency. 4. Establish 15 Post-COVID assessment children and young people’s hubs across England in order to coordinate care across a range of services. Building on the services already in place, these specialist hubs around England will provide assessment services or remote support to other clinicians and ensure ongoing holistic support. 5. Develop standard rehabilitation pathway packages to treat the commonest symptoms of Long COVID. Local NHS systems will include a rehabilitation pathway programme in their Long COVID service plans due by Classification: Official

5 | Long COVID: the NHS plan for 2021/22

mid-July 2021. It should be based on the principles included in the RightCare: Community Rehabilitation Toolkit. 6. Extend the use of the Your COVID Recovery online rehabilitation platform. Local NHS systems will include planning to ramp up Your COVID Recovery supported patient-self management in their Long COVID service plans due by mid July 2021. The aim is to support those with Long COVID remotely to manage and monitor their symptoms where appropriate. Improved functionality will enable Your COVID Recovery online content to be translated into more than 100 languages. Work will also be undertaken to ensure improved accessibility through inclusion of easy read options and a printed manual which replicates online content. 7. Collect and publish data to support operational performance, and clinical and research activities. From September 2021 onwards, NHS Long COVID activity data on referral, assessments and waiting times for post- COVID assessment clinics and the onward patient journey, including use of Your COVID Recovery, will be published monthly. A Long COVID registry for patients attending the Post-COVID Assessment Clinics will be established by July 2021. This registry will facilitate understanding of the longitudinal patient journey and support operational, clinical and research activities, through data linkage across national data collections. Importantly, it will also allow a more granular understanding of healthcare access for groups who experience health inequalities. 8. Focus on equity of access, outcomes and experience. The NHS will use data tools to track take up by gender, ethnicity and deprivation, against expected prevalence. We will partner with National Voices, Asthma UK/British Lung Foundation and other Voluntary, Community and Social Enterprise Sector (VCSE) organisations to engage with communities more likely to be impacted by health inequalities. NHS England and NHS Improvement will appoint six Patient and Public Voice Partners to provide advice on Lived Experience to the programme. We will carry out a Health Equity Audit to assess the degree to which we achieve our vision of equitable access, excellent experience and optimal outcomes for all communities. 9. Promote good clinical practice through the national learning network on Long COVID for healthcare professionals including a network for nurses Classification: Official

6 | Long COVID: the NHS plan for 2021/22

working in community and acute care and for the wider NHS. We have developed a site on the FutureNHS platform to provide educational materials and enable information sharing across healthcare organisations and staff. 10. Support our NHS staff suffering from Long COVID by offering a package of comprehensive support for health and wellbeing including mental health hubs, rapid referral to services, local occupational health and online wellbeing resources.

Summary of actions on Long COVID 21/22
Actions Delivery Date Owner 1. Invest a further £70 million to expand Long COVID treatment and rehabilitation

21/22 NHS England and NHS Improvement 2. Invest £30 million in the rollout of an enhanced service for general practice to support patients in primary care 21/22 3. Publish information about waiting times of post-COVID assessment services to ensure transparency September 2021 4. Evaluate post-COVID Assessment Clinics to obtain the lessons learned from set up
Ongoing
5. Ongoing review of the Long COVID clinical pathway to reflect the latest research evidence and operational experience Ongoing
6. Extend the use of the Your COVID Recovery online rehabilitation platform August 2021
7. Use data tools showing take up by gender, ethnicity and deprivation, against expected prevalence. July 2021

  1. Partner with National Voices, Asthma UK/British Lung Foundation and other Voluntary, Community and Social Enterprise Sector organisations to engage with communities more likely to be impacted by health inequalities. Summer 2021
  2. Appoint six Patient and Public Voice Partners to provide advice on lived experience to the programme May 2021
  3. Carry out a Health Equity Audit to assess the degree to which we achieve our vision of equitable access, excellent experience and optimal outcomes for all communities. Summer 2021
  4. To improve accessibility of information we will ensure ‘easy read’ and printed versions of Your COVID Recovery materials are accessible, and that translations in over 100 languages will be available.
    August 2021
  5. Promote good clinical practice through the national learning network on Long COVID for healthcare professionals Ongoing
  6. Further develop resources on FutureNHS platform to provide educational materials and enable information sharing across healthcare organisations and staff Ongoing
  7. For NHS staff, comprehensive support for health and wellbeing including mental health hubs, rapid referral to services, local occupational health and online wellbeing resources will be available.
    June 2021
  8. All local NHS systems will have submitted to NHS Regions, fully staffed Long COVID service plans covering the whole pathway from primary to specialist care 12 July 2021 Integrated Care Systems
  9. Local NHS systems will include planning to ramp up Your COVID Recovery supported patient-self management in their Long COVID service plans
    July 2021 Classification: Official

7 | Long COVID: the NHS plan for 2021/22

  1. Long COVID services will nominate care coordinators to manage complex cases July 2021
  2. Develop standard rehabilitation pathway packages to treat the commonest symptoms of Long COVID July 2021
  3. Establish 15 Post COVID assessment paediatric hubs across England July 2021
  4. NHS Long COVID activity data on referral, assessments and waiting times for post-COVID assessment clinics and the onward patient journey including use of Your COVID Recovery will be published monthly September 2021 NHS England and NHS Improvement and NHS Digital
  5. A Long COVID digital code will be added to the psychological therapies Minimum Data Set. Summer 2021
  6. A Long COVID registry for patients attending the Post COVID Assessment Clinic will be established
    July 2021

Classification: Official

8 | Long COVID: the NHS plan for 2021/22

  1. What we know about Long COVID Clinical case definition
    Some people can experience ongoing symptoms following COVID-19 well after their initial infection. People of all ages and backgrounds, irrespective of the severity of initial infection, can experience Ongoing Symptomatic COVID-19 and Post COVID-19 Syndrome, also known as ‘Long COVID’.
    Long COVID is a multi-system condition with a wide range of debilitating symptoms spanning fatigue, breathlessness, cough, chest pain, heart palpitations, fever, headache, muscle pain, gastrointestinal problems and loss of taste and smell.
    Many people with Long COVID may experience a range of psychological and cognitive symptoms such as depression, anxiety, post-traumatic stress disorder (PTSD) and ‘brain fog’ or other cognitive impairments, in addition to physical symptoms. This can also have a social impact. Symptoms can fluctuate and change over time. They are well recognised by p

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